Cure Duchenne Clinics

CURE DUCHENNE CLINICS: DELIVERING WORLD-CLASS CARE

For over 20 years, CureDuchenne has been a driving force behind many of the most significant breakthroughs in Duchenne muscular dystrophy treatment and care. But science alone is not enough—access to quality care matters.

We are building a nationwide network of CureDuchenne Clinics that provide comprehensive, multidisciplinary care to patients with Duchenne and Becker in dire need of specialized services. Each CureDuchenne Clinic is built in partnership with trusted providers and led by experienced specialists, offering services in multiple languages and serving as a hub for research, clinical trials, and emerging therapies.

Our goal is to:

• Ensure long-term, comprehensive care for patients as they age
• Remove barriers to care based on geography, language, age or insurance status
• Deliver exceptional clinical services to every Duchenne patient, with a range of specialties all under one roof
• Accelerate access to new and emerging treatments
• Create scalable, sustainable models for care

The CureDuchenne Clinic at the Neurology & Neuromuscular Care Center, Denton, Texas

Opened March 2023
Led by: Dr. Diana Castro

Breaking Barriers in the Nation’s Most Uninsured Region

North Texas is home to an estimated 1,000 Duchenne patients and one of the highest rates of uninsured residents in the nation—particularly among Spanish-speaking families. Recognizing this significant need, CureDuchenne partnered with Dr. Diana Castro to launch a flagship clinic that meets families where they are. CONTACT DR. CASTRO’S OFFICE HERE

• 420+ patients served in 2024
• Nearly 30% are uninsured or underinsured
• Clinic staff is 75% bilingual in Spanish and English
• Offers neurology, cardiology, pulmonology, nutrition, and physical/occupational therapy
• Offers pediatric and adult services, ensuring patients don’t lose access to services when transitioning to adult care
• Participating in 12+ clinical trials with 9 more in the pipeline
• Only non-academic U.S. clinic to administer FDA-approved gene therapy for Duchenne (Elevidys)
  

“CureDuchenne was the only organization that stepped up from day one. Without their support, this clinic wouldn’t exist—and hundreds of patients wouldn’t be getting the care they need.”
— Dr. Diana Castro

The CureDuchenne Clinic within the Neuromuscular Program at CHOC

Orange County, California | Opening 2025
In partnership with CHOC & Rady Children’s Health
Led by: Dr. John Crawford & Dr. Julian Thomas

A New Standard for Southern California

CureDuchenne and CHOC are building on decades of expertise to establish a clinic offering world-class care and research, integrating cutting-edge therapies, clinical trials, and expert-led services to enhance both quality of life and long-term outcomes for individuals with Duchenne and other neuromuscular diseases.  

• Multidisciplinary care: neurology, cardiology, pulmonology, physical/occupational therapy, nutrition, and more
• Access to next-generation diagnostics for earlier and more precise disease monitoring
• Delivery site for advanced gene therapies and emerging treatments via new Outpatient Infusion Center
• Embedded research infrastructure to support clinical trials and data collection
• Prioritizing equity for low-income, Spanish-speaking, Southeast Asian and African American families
• Creating a national model for adult transition care in partnership with UCI

CureDuchenne has committed nearly $1.5M over three years to support key clinical positions, research staff, diagnostics, and transition planning as well as provide significant expert guidance in Duchenne and promising next generation therapies.

“We’re not just delivering care. We’re changing the trajectory of Duchenne across a lifetime.”
— Dr. Julian Thomas