AUSTIN, Texas., April 16, 2024 – CureDuchenne, a leading global nonprofit focused on finding and funding a cure for Duchenne muscular dystrophy, and the Revell family of Austin hosted the 15th annual fundraiser gala, Champions to CureDuchenne: Disco for Duchenne, on April 6, 2024. The event raised $385,000 to benefit CureDuchenne as it accelerates scientific research and pioneers educational programs to care for families affected by Duchenne, a progressive, fatal disease affecting 300,000 worldwide.
NEWPORT BEACH Calif., March 8, 2024 – Marking a significant milestone, Napa in Newport benefiting CureDuchenne will commemorate its 10th anniversary on April 20, 2024, at the luxurious Pendry Newport Beach. Esteemed for its unparalleled selection of Napa Valley’s finest wines, this year’s gala is a celebration of a decade-long journey of philanthropy, community, and exquisite wine. The gala showcases a Grand Tasting, dining tables hosted by vintners, a handcrafted dinner with carefully selected wine pairings, and extraordinary auction items including rare wines, luxurious vacations, and one-of-a-kind experiences. The evening is set to be more intimate than ever before, with limited attendance and new, luxurious weekend ticket packages that include hotel accommodations and amenities.
Miami, FL, March 25, 2024 – CureDuchenne and the Finazzo family of Miami hosted “Champions in Miami” on Saturday, March 9, 2024 at the Kimpton Surfcomber in Miami Beach, bringing together Miami’s top business leaders, entrepreneurs, influencers, and philanthropists for a night of delicious flavors, cocktails, cigars, and live entertainment. All event proceeds benefit CureDuchenne, a global leader in research, patient care, and innovation for improving and extending the lives of those living with Duchenne muscular dystrophy.
AUSTIN, Texas., February 28, 2024 – CureDuchenne, a leading global nonprofit focused on finding and funding a cure for Duchenne muscular dystrophy, and the Revell family of Austin will host the 15th annual fundraiser gala, Champions to CureDuchenne: Disco for Duchenne, on April 6, 2024. Austin’s own “Saturday Night Fever” will be filled with glittering lights and pulsating beats, bringing hundreds of philanthropists, businesspeople, and local community members together under one roof at the University of Texas Golf Club to disco for a purpose. Emmy Award-winning weathercaster Jim Spencer will emcee the event, featuring a vibrant disco dance party, extraordinary auctions, delightful drinks, and a tantalizing culinary experience. All proceeds from the event benefit CureDuchenne as it accelerates scientific research and pioneers educational programs to care for families affected by Duchenne — a progressive, fatal disease affecting 300,000 worldwide.
CureDuchenne and the Finazzo family of Miami will host “Champions in Miami” on Saturday, March 9, 2024 at the Kimpton Surfcomber in Miami Beach, bringing together Miami’s top business leaders, entrepreneurs, influencers, and philanthropists for a night of delicious flavors, cocktails, cigars, and live entertainment. All event proceeds will benefit CureDuchenne, a global leader in research, patient care, and innovation for improving and extending the lives of those living with Duchenne muscular dystrophy.
Seasoned Healthcare Professional Brings Experience in Patient Advocacy and Community Education to Global Rare Disease Nonprofit Newport Beach, Calif. – January 22, 2024 – CureDuchenne, a global nonprofit committed to finding […]
Upcoming Events Across the Country Provide Latest Treatment Information and Resources for Managing Challenges of Living with Duchenne or Becker and Improving Quality of Life NEWPORT BEACH, Calif., January 22, […]
Southern California’s Premier Wine Event Raised Funds and Awareness for Rare Disease with Acclaimed Napa Valley Vintners. NEWPORT BEACH Calif., November 14, 2023 – CureDuchenne and Vintner Chair Melka Estates hosted the Ninth Annual Napa […]
The U.S. FDA announced today its decision to approve AGAMREE (vamorolone), a new steroid for individuals with Duchenne muscular dystrophy 2 years or older. This approval comes largely based on […]
