Duchenne Muscular Dystrophy
Duchenne Muscular Dystrophy
Early diagnoses for Duchenne
Hope for newly diagnosed DMD
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Find Out What’s New in Duchenne Research
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Stay Informed
Find Out What’s New in Duchenne Research
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Linking the Community to a Cure
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Making Earlier Diagnosis a Reality with Newborn Screening
CureDuchenne has partnered with Brigham & Women’s Hospital to offer the first supplemental newborn screening for Duchenne in a clinical setting.
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There is Great Hope for Duchenne!
Newly Diagnosed Families, Get the Help You Need!
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With a mission to cure Duchenne muscular dystrophy

CureDuchenne breaks the traditional charitable mold and balances passion with business acumen. We will fulfill our mission to cure Duchenne muscular dystrophy with our innovative venture philanthropy model that funds groundbreaking research, early diagnosis and treatment access. With pioneering education and support programs, our organization drives real change for those with living with the disease and their loved ones.

The CureDuchenne one-to-one program provides meetings with our scientists, physical therapists, parents, fundraising team and family support resource coordinators. Email us at Cares@CureDuchenne.org to set up a time that works with your schedule. Together we will cure Duchenne muscular dystrophy!

Making an Impact on Duchenne

Accelerating Curative treatments



Since the inception of CureDuchenne, life expectancy for Duchenne has increased by a decade.

Funding Critical Clinical Trials



18 projects funded by CureDuchenne have progressed to clinical trials.

Making an Impact



We’ve raised over $50 million for research, education and care.

Accelerating a Cure



CureDuchenne contributed early funding for the first FDA-approved Duchenne drug.

Working Towards the Future



Our model has leveraged over $3 billion in follow-on funding for future programs from investors and biotech companies.

Working towards a cure for Duchenne

Duchenne is a devastating muscle disease.

Duchenne muscular dystrophy (DMD) is the most common form of muscular dystrophy, occurring in approximately 1:5,000 male births. Those affected with DMD lose their ability to walk, feed themselves, breathe independently and succumb to heart failure.

But there’s hope through new pharmacological and gene-based therapies. You can help make a difference in finding a cure.

Message from Duchenne mom, Debra Miller

Founder & CEO of CureDuchenne

Receiving the diagnosis for Duchenne was the scariest time of my life and I know all about the emotions you are feeling. Equipping yourself with the knowledge you need to get the best care for your child is the best thing you can do. Connecting with other families going through the same thing can also be incredibly helpful.

Once I had the confidence that I was going down the right path of care for my son, I founded the nonprofit CureDuchenne and dedicated my life to raising funds to find a cure and to helping other families navigate care and clinical trials. Consider all of us at CureDuchenne as your team that is striving to make the future better for your child. Schedule a call with our experts HERE.