David was diagnosed with Duchenne a month before his 4th birthday. His pediatrician told us to see a genetic counselor since he was having a hard time meeting milestones. A week after his diagnosis, I was diagnosed as a carrier. It was a very difficult time in the beginning and at times it’s still difficult. I had heard of Muscular Dystrophy from my field of work, but not heard of DMD until his diagnosis. We try to plan trips as a family as much as possible. Before we would just hop in the car or plane and go on a trip. Now we have to plan it out more like is there going to be accessibility for him in the hotel or family members house, and restaurants. We make the best of everything and just live life to the fullest.
How to Identify and Manage Fat Embolism Syndrome (FES) in Fractures
REGENXBIO Announces Completion of Enrollment in Cohort 2 and Additional Positive Interim Data in AFFINITY DUCHENNE® Trial
Sarepta Therapeutics Announces Positive Data for Duchenne Muscular Dystrophy Amenable to Skipping Exon 51
CureDuchenne Welcomes Patricia Brown as Senior Director of Community Engagement
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