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CureDuchenne Cares Improves Standard of Care and Clinical Trial Education Throughout the U.S. for Families Affected by Duchenne
2017 CureDuchenne Cares Schedule Announced
CureDuchenne to Host Webinar with TRiNDS on a New Solution for the Duchenne Research Community
NEWPORT BEACH, Calif., January 16, 2017 – CureDuchenne, a nonprofit dedicated to funding research and improving patient care for Duchenne muscular dystrophy, will host a webinar with TRiNDS, a new […]
BioMarin Transfers Duchenne Natural History Database to CureDuchenne To Improve Knowledge of Duchenne Patients and Improve Clinical Outcomes
NEWPORT BEACH, Calif., January 10, 2017 – CureDuchenne announced today that BioMarinPharmaceutical Inc. has transferred its Duchenne natural history database to CureDuchenne, the venture philanthropy not-for-profit organization that is leading […]
CureDuchenne Ventures Invests in TRiNDS to Provide Clinical Trial Solutions for Neuromuscular Disorders
NEWPORT BEACH, Calif., Dec. 19, 2016 – CureDuchenne Ventures, LLC, a company that funds research to find a cure for Duchenne muscular dystrophy, announced today that they invested inTRiNDS, LLC, […]
Elite Napa Wineries Visit Orange County for the Third Annual Napa in Newport on March 4
NEWPORT BEACH, Calif., December 1, 2016 – The date for the highly anticipated 2017 Napa in Newport Wine Auction has been set for March 4 at the Ritz-Carlton, Laguna Niguel. […]
CureDuchenne Aims for a Treatment for the 87%
Newport Beach, CA Nov. 28, 2016 — It has taken decades, millions of research dollars, heartache and hopefulness to reach a critical milestone of the first FDA approved pharmaceutical treatment […]
CureDuchenne To Host Webinar With Marathon Pharmaceuticals on November 1 to Update the Duchenne Community on Deflazacort Access and Regulatory Status
NEWPORT BEACH, CA. October 25, 2016 – CureDuchenne, a nonprofit dedicated to funding research and improving patient care for Duchenne muscular dystrophy, will host an informational webinar on November 1, […]
Nonprofits, Pharmaceutical Companies and Noted Clinicians Join to Launch the Collaborative Trajectory Analysis Project (cTAP), Advancing Clinical Trial Design for Duchenne Muscular Dystrophy
Consortium Working Together to Bring Quality of Life Treatments to the Duchenne Community NEWPORT BEACH, Calif., October 25, 2016 – The next wave in tackling Duchenne Muscular Dystrophy is getting […]
CureDuchenne to Host a Webinar on Duplication Research for Duchenne with Dr. Flanigan From Nationwide Children’s Hospital on October 12
NEWPORT BEACH, Calif., October 7, 2016: CureDuchenne, a nonprofit dedicated to funding research and improving patient care for Duchenne muscular dystrophy, will host a webinar with Dr. Kevin Flanigan from […]