Duchenne muscular dystrophy research update Members of the CureDuchenne team recently attended the 31st World Muscle Society (WMS) Congress, where we spent a productive week connecting with researchers, clinicians, pharmaceutical […]
Driving opens a world of possibilities for young men with Duchenne muscular dystrophy. It’s been life changing for me. Below you’ll find my story about finding an accessible vehicle, getting behind the […]
When a child is diagnosed with Duchenne muscular dystrophy, one of the most important parts of care is having a healthcare team that understands the disease. Physical therapy plays an essential role in […]
CureDuchenne was founded 25 years ago, and during that time we have witnessed and participated in the approval of multiple FDA-approved therapies, dozens of clinical trials, and an expanding pipeline of investigational treatments. But there is still no cure for […]
CureDuchenne has submitted comments to the U.S. Food and Drug Administration (FDA) on several proposed policies that could affect how new gene therapies and other genetic treatments are developed and reviewed for Duchenne muscular dystrophy, Becker muscular dystrophy, and other rare […]
Respiratory infections can become serious more quickly in people living with Duchenne muscular dystrophy (DMD) because respiratory muscles weaken over time. Understanding how to recognize symptoms early, use airway clearance techniques effectively, and know when to […]
As children with Duchenne muscular dystrophy grow, families often find themselves navigating new questions that extend beyond medical care. How can parents encourage independence while still providing support? What resources can help […]
Just a few years ago, families attending CureDuchenne’s FUTURES 2026 Annual Conference were weighing whether to participate in clinical trials. Today, the conversation has shifted dramatically. With multiple approved therapies now available for Duchenne muscular dystrophy (DMD), […]
When people think about physical therapy with Duchenne muscular dystrophy, they often picture stretching exercises or clinic visits. But at the CureDuchenne FUTURES 2026 Annual Conference, physical therapists Doug Levine, PT, and Jennifer Wallace, PT , […]
