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Linking the Community to a Cure
NOW ENROLLING
Making Earlier Diagnosis a Reality with Newborn Screening
CureDuchenne has partnered with Brigham & Women’s Hospital to offer the first supplemental newborn screening for Duchenne in a clinical setting.
With a mission to cure Duchenne muscular dystrophy
CureDuchenne breaks the traditional charitable mold and balances passion with business acumen. Our innovative venture philanthropy model funds groundbreaking research, early diagnosis and treatment access. With pioneering education and support programs, our organization drives real change for those with Duchenne muscular dystrophy and their loved ones.
Making an Impact
Accelerating Curative treatments
10
Since the inception of CureDuchenne, life expectancy for Duchenne has increased by a decade.
Funding Critical Clinical Trials
17
17 projects funded by CureDuchenne have progressed to clinical trials.
Making an Impact
$50+M
We’ve raised over $50 million for research, education and care.
Accelerating a Cure
1st
CureDuchenne contributed early funding for the first FDA-approved Duchenne drug.
Working Towards the Future
$2.9B
Our model has leveraged $2.9 billion in follow-on funding for future programs from investors and biotech companies.
Duchenne is a devastating muscle disease.
Duchenne muscular dystrophy (DMD) is the most common form of muscular dystrophy, occurring in approximately 1:5,000 male births. Those affected with Duchenne lose their ability to walk, feed themselves, breathe independently and succumb to heart failure. But there’s hope through new pharmacological and gene-based therapies. You can help make a difference.
Family Stories
Why Mothers Should Be Celebrated Every Day
There is no way to be a normal parent, when you have abnormal circumstances. The important thing is that you keep getting up every day loving those kids. You may think it’s not enough, but your children see you differently than you see yourself. I have days that I feel like super mom and days that I feel like a huge failure. “It’s just too hard,” I mumble to myself as I crawl into bed at night unsure of how I will possibly do the whole thing again tomorrow.
Hawken’s Perspective: Overcoming a Fractured Femur with Duchenne
There’s plenty of times in life where plans fall apart. That’s especially the case if you have Duchenne muscular dystrophy like me. A building you were expecting to enter might […]
Finding A Way on Father’s Day
Happy Father’s Day to all of the dads out there who have either found a way – or made one – so that their kids can experience their best life.
– Paul Miller, aka Hawken’s dad
The CureDuchenne 2019 FUTURES Time Capsule Video
The CureDuchenne Time Capsule Video is a beautiful compilation of interviews conducted at the 2019 FUTURES Conference in Anaheim, CA. We asked families to share their stories with us, as […]
“We were very impressed with CureDuchenne’s portfolio and how their funding is put towards research. We wanted the money we raise to go 100% towards research in clinical trials…”
Braedan’s Bridge began the journey in 2011 shortly after our own son, Braedan was diagnosed with Duchenne muscular dystrophy. As most parents, our story is very similar. One day you […]
“We didn’t know anything about Duchenne and felt isolated that there was no one we could turn to, other than the doctors or the internet for advice, inspiration, or HOPE…”
August 8, 2011 was the day we first heard the word Duchenne. Every moment of that day is etched in my memory. We were hit out of the blue with […]
“We joined CureDuchenne more than a decade ago in their mission to find a cure for Duchenne. We partnered with CureDuchenne because they are steadfast in identifying and funding promising research…”
When our two sons Timothy, 13, and Andrew, 10, were diagnosed with Duchenne muscular dystrophy there was little hope. We were told there was no cure or treatment and that […]
“My son Aiden was diagnosed with Duchenne Muscular Dystrophy on June 2, 2015. He was 3 at the time. That date will forever be etched in my mind…”
My heart was beating so fast, anxiety creeping into my body. It felt like everything stopped. I can’t remember her exact words, but I distinctly remember the fear that took […]
“As part of our journey, our family has partnered with CureDuchenne, a national non-profit that is leading the effort to accelerate the drug approval process on potential life-saving therapies…”
Our Journey Deaing with Duchenne Our son Joshua was born in 2007. Joshua, our oldest son, is an amazing and fun-loving boy. He was diagnosed with Duchenne Muscular Dystrophy in 2013. […]
“The CureDuchenne Cares program is one of the most impactful courses I’ve ever taken. This program has empowered me to become the best physical therapist that a Duchenne patient and their family needs…”
Every Duchenne parent wants to know that their child is in good hands with their medical team. Physical therapy is an important part of that medical team, and Texas physical […]
Latest News
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15 best accessories for power wheelchairs and scootersJune 2, 2023![]()
How to manage stress, anxiety, and depressionMay 26, 2023![]()
CureDuchenne visits India and exchanges knowledge about DuchenneMay 18, 2023![]()
Locanabio Announces Equity Investment from CureDuchenne Ventures to Support Development of snRNA Exon Skipping Approach for Duchenne Muscular Dystrophy (DMD)May 15, 2023![]()
Debra Miller Representing Patient Advocacy CommunityMay 12, 2023
