Ask Me Anything: Traveling with Duchenne with Marissa Penrod, Adam Malone and Alan Chaulet

This pre-recorded webinar delves into the world of travel with special guests, Marissa Penrod and Adam Malone. Not only is Marissa an expert on traveling with Duchenne, but Adam is a travel advisor who also happens to live with the condition. We are also be joined by Alan Chaulet, who is the Vice President of All Wheels Up which is a non-profit that is working to increase awareness for safer and more dignified accessible travel. Together, they provide invaluable insights, tips, and stories that will leave you feeling inspired and empowered to embark on your very own adventure.

PTC Therapeutics – EMFLAZA® LANDSCAPE IN 2024

Join PTC Therapeutics and CureDuchenne for this prerecorded webinar to hear important information regarding Emflaza, PTC Cares and the programs that support the Duchenne community. Topics include:Understanding Your PrescriptionHow to Ensure Your Son […]

Professional Webinar Series

Stay calm and take a deep breath! 

For those with Duchenne, maintaining respiratory strength and health contributes to health-related quality of life and some assessment and treatment is within our scope of practice as therapists.  This webinar […]

CureDuchenne Webinar with NS Pharma: VILTEPSO

VILTEPSO: AN FDA-APPROVED TREATMENT FOR PATIENTS WITH DUCHENNE MUSCULAR DYSTROPHY (DMD) AMENABLE TO EXON 53 SKIPPING This is a pre-recorded webinar with CureDuchenne, NS Pharma and guest speaker Dr. Mathula […]