The CureDuchenne Champions is a collaborative group of members of the Duchenne community who contribute their experiences and expertise to further the mission of CureDuchenne…to cure Duchenne muscular dystrophy and improve the lives of everyone affected by this disease.


Family Story Aluffi

Aluffi Family

Chris, Sara, Lucian, Joaquin

Joaquin was diagnosed with Duchenne Muscular Dystrophy in early 2019. While this diagnosis was completely devastating it also answered so many questions that we had been struggling with for years. […]

New Hampshire
Family Story Aviles

Aviles Family

Ivan, Jessica, Malia, Gianni, Milani, Gabriel

Gabe was a surprise pregnancy! I was 39 and already had three kids when I gave birth to him, and when I was pregnant, all tests came back indicating that […]

Family Story Cazin

Cazin Family

Cole, Christi, Logan, Mason, Addison

We have two sons and a daughter and no family history of Duchenne. In April of 2018, we took our kids to the pediatrician for a well check. We mentioned […]

North Dakota
Family Story Edwards

Edwards Family

Mallory, Steve, Grant, Christian

We are the Edwards Family in North Dakota. Our 11 year old son Grant has Duchenne. Diagnosed at age 4. Grant’s younger brother Christian age 8 is unaffected. I carry […]

North Carolina
Family Story Foster

Foster Family

Brad, Misty, Cayden, Nathan

Our son was diagnosed April 1, 2019. We have spent the past 2 years doing research, completing a clinical trial and being an advocate for our son and Duchenne Muscular […]

Family Story Heaton

Heaton Family

Paul, Laura, Elyse, Grant

Our son Grant is six years old and was diagnosed with Duchenne Muscular Dystrophy at age three. Duchenne is a genetic disease that destroys muscle, all of them. We are […]

Family Photo Miner Moebel

Miner Moebel Family

Kate Miner Moebel, Hannah Riddle, Clint Riddle, Tucker Lloyd, Charlotte Riddle, Shepherd Riddle, Arlo Riddle

I am Shepherd’s grandma. Shep was diagnosed w DMD August 2019. Our family responded, likely exactly the way every family responds – an emphatic “No”, followed closely by a less […]

Family Photo Monday

Monday Family

Jon, Sarah, Gretchen, Natalie, Momo, Abe, Henry

We are blessed that our son Momo joined our family through adoption. It was a long road to bring him home that led us to understanding that God’s plans are […]

Family Photo Munoz

Munoz Family

Ramiro, Maribel, Joshua, Jacob, Jeremy

In 2013, our oldest son, Joshua, was diagnosed with Duchenne muscular dystrophy. He was 5 years old at the time and we were devastated with the diagnosis. After doing some […]