The CureDuchenne Champions is a collaborative group of members of the Duchenne community who contribute their experiences and expertise to further the mission of CureDuchenne…to cure Duchenne muscular dystrophy and improve the lives of everyone affected by this disease.
You can support our champions by purchasing a T-shirt. Each purchase helps fund vital research and support services. Shop now!
Interested in being a CureDuchenne Champion? Check out our volunteer opportunities here
Our Duchenne journey began like so many others. Gabe, our fourth son, wasn’t reaching his developmental milestones. His doctor told us there was nothing wrong with him, and that, as the […]
We have two sons and a daughter and no family history of Duchenne. In April of 2018, we took our kids to the pediatrician for a well check. We mentioned […]
We are the Edwards Family in North Dakota. Our 11 year old son Grant has Duchenne. Diagnosed at age 4. Grant’s younger brother Christian age 8 is unaffected. I carry […]
Our son was diagnosed April 1, 2019. We have spent the past 2 years doing research, completing a clinical trial and being an advocate for our son and Duchenne Muscular […]
Our son Grant is six years old and was diagnosed with Duchenne Muscular Dystrophy at age three. Duchenne is a genetic disease that destroys muscle, all of them. We are […]
Raising Awareness and Funding Duchenne Research: Christian Hogan and his 22-year-old son Micah, who has Duchenne, envisioned this event after attending a reggae show in Long Beach several years ago.
My grandson Shepherd has been living with his Duchenne diagnosis for 5 years. Since that day in 2019, our family has turned into crusaders for the Cause. It has been […]
We are blessed that our son Momo joined our family through adoption. It was a long road to bring him home that led us to understand that God’s plans are […]
In 2013, our oldest son, Joshua, was diagnosed with Duchenne muscular dystrophy. He was 5 years old at the time and we were devastated with the diagnosis. After doing some […]
