The CureDuchenne Champions is a collaborative group of members of the Duchenne community who contribute their experiences and expertise to further the mission of CureDuchenne…to cure Duchenne muscular dystrophy and improve the lives of everyone affected by this disease.

You can support our champions by purchasing a T-shirt. Each purchase helps fund vital research and support services. Shop now!

MEET THE CURE DUCHENNE CHAMPION FAMILIES 

 Interested in being a CureDuchenne Champion? Check out our volunteer opportunities here

California

Nilson Family

Barry, Luci, Jake, Henry

Our youngest son, Henry, was diagnosed with Duchenne in August 2011 – shortly before his 3rd birthday. It was a fluke test that shocked even the doctors as it was […]

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California
Family Story Ormiston

Ormiston Family

Nick, Agnes, Joan, Darren

Where to start? Darren is adopted. He came to us at 2 months old. I immediately requested any and all evaluations available because mom had been using meth while pregnant […]

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Texas
Family Story Revell

Revell Family

Tim, Laura, Timothy, Andrew

My wife Laura, found CureDuchenne by doing a google search around Duchenne organizations that aligned with our Christian Faith. The search results led us to the Miller family who turned […]

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South Africa
Family Story Winslow

Winslow Family

Brohnsonn, Christine, Jason

I left the Doctor’s room with a packet of flu meds for Jason and an unexpected post it sticker handed to me by the GP that read Duchenne Muscular Dystrophy. […]

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