The CureDuchenne Champions is a collaborative group of members of the Duchenne community who contribute their experiences and expertise to further the mission of CureDuchenne…to cure Duchenne muscular dystrophy and improve the lives of everyone affected by this disease.
You can support our champions by purchasing a T-shirt. Each purchase helps fund vital research and support services. Shop now!
In 2013, our oldest son, Joshua, was diagnosed with Duchenne muscular dystrophy. He was 5 years old at the time and we were devastated with the diagnosis. After doing some […]
Our youngest son, Henry, was diagnosed with Duchenne in August 2011 – shortly before his 3rd birthday. It was a fluke test that shocked even the doctors as it was […]
Where to start? Darren is adopted. He came to us at 2 months old. I immediately requested any and all evaluations available because mom had been using meth while pregnant […]
Our son, Grant, was almost 6 years old when he was diagnosed in January of 2017 with Duchenne Muscular Dystrophy. Our daughter Wrenna, and Grant’s best friend, was 4. To […]
My wife Laura, found CureDuchenne by doing a google search around Duchenne organizations that aligned with our Christian Faith. The search results led us to the Miller family who turned […]
David was diagnosed with Duchenne a month before his 4th birthday. His pediatrician told us to see a genetic counselor since he was having a hard time meeting milestones. A […]
Champion Volunteer Job Board Welcome to the CureDuchenne Champions Volunteer Opportunities board! Here, you can explore a range of rewarding volunteer positions dedicated to supporting individuals and families affected by […]
I left the Doctor’s room with a packet of flu meds for Jason and an unexpected post it sticker handed to me by the GP that read Duchenne Muscular Dystrophy. […]
