We are the Edwards Family in North Dakota. Our 11 year old son Grant has Duchenne. Diagnosed at age 4. Grant’s younger brother Christian age 8 is unaffected. I carry DMD and Grant & I both have duplication of 12-13. DMD is so horrible and has affected our family and friends tremendously. Many of us had never heard of it. Needless to say we were and will all be heartbroken forever. We stay positive and try to keep a smile on our boys faces with doing things they love outdoors like hunting, fishing and camping. We raise funds for research by doing local run walk events and even the Highway Patrol not shaving for the month of November to get breakthrough research and hopefully a cure asap. We have lots of hope in science and Cure Duchenne!!
How to Identify and Manage Fat Embolism Syndrome (FES) in Fractures
REGENXBIO Announces Completion of Enrollment in Cohort 2 and Additional Positive Interim Data in AFFINITY DUCHENNE® Trial
Sarepta Therapeutics Announces Positive Data for Duchenne Muscular Dystrophy Amenable to Skipping Exon 51
CureDuchenne Welcomes Patricia Brown as Senior Director of Community Engagement
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