The Community section provides information on topics related to finding and building a supportive community, family support resources, inspiring messages from young men with Duchenne and more.
Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center, Director for Translational Research for the Advanced Heart Failure and Transplant Cardiology Program, UT Southwestern Medical Center
This resource provides tips on how to effectively communicate with doctors, teachers, family members, and more while discussing your child’s care and condition.
This resource presents a conversation about family dynamics, communication strategies and how to cope as a family unit navigating a Duchenne diagnosis.
Taylor Berhow, MSW, MPA
Social Worker and Neuro-behavioral Health Specialist
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