Title: Living with Duchenne
Bio: Jake Marrazzo is a freshman at Wheaton college, patient advocate, published author and owner of The World of Jake Marrazzo, LLC. Together with his family Jake created a non profit 4 Jake's Sake which helps families living with Duchenne to make their homes and lives accessible. He has spoken to many biomedical companies about living with Duchenne and appeared on many local TV segments, with the biggest claim to fame on the Dr. Phil Show. Jake lives the life not the diagnosis!
An inspiring conversation about living in the moment with a rare diagnosis.
Adults with Duchenne as they explain how they have embraced their FUTURE with Duchenne. They will share their perspective on how they’ve navigated school, jobs, and relationships to live their most purposeful lives in the face of adversity.
DJ Kimble, Jake Marrazzo, Ryan Russell, PhD,
Hawken Miller
