Lori Safford

Title: Duchenne Mother and Advocate

Bio: Lori is mom to Ben, Sam and Lydia, three young adults affected by DMD. After receiving her MA from Simmons College in Communications Mgmt and working for Fortune 500 companies for almost 2 decades, Lori and her late husband Mike made the decision for her to stay home after having 3 kids in 3 years! She enjoys volunteering at her church, at NH Cornerstone Action and for Joni and Friends by going overseas to help others with disabilities whenever she can.

2021 FUTURES Quality of Life Panel: Easing the Burden

Focused on engaging families in conversations about the load they carry and how to manage life as a caregiver.

Taylor Berhow, MSW, MPA

Social Worker and Neuro-behavioral Health Specialist

University of Utah Health

Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

Richard Kravitz, MD

Professor of Pediatric Pulmonary and Sleep Medicine

Duke University

Marissa Penrod


The Duchenne Family Assistance Program

Lori Safford

Duchenne Mother and Advocate