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2021 FUTURES Quality of Life Panel: Easing the Burden

Focused on engaging families in conversations about the load they carry and how to manage life as a caregiver.

Taylor Berhow, MSW, MPA

Social Worker and Neuro-behavioral Health Specialist

University of Utah Health

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Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

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Richard Kravitz, MD

Professor of Pediatric Pulmonary and Sleep Medicine

Duke University

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Marissa Penrod

Co-Founder

The Duchenne Family Assistance Program

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Lori Safford

Duchenne Mother and Advocate

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Beginning the Journey - diagnosed 0-3 yearsGrowth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years

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