Lauren Morgenroth, MS, CGC

Title: Chief Operating Officer

Organization: TRiNDS

Bio: Lauren Morgenroth, MS is the Chief Operating Officer of TRiNDS and has had a career in multicenter clinical trial operations for over 20 years. She joined the CINRG, an academic clinical trial consortium for which TRiNDS is now the official Coordinating Center, in 2004.Lauren has authored over two dozen publications, many based on work when she managed the CINRG Duchenne Natural History Study and working groups on disease-causing mutations in Duchenne. Lauren has also done work on barriers to engagement in rare disease research.


This panel discusses genetic carrier health, mental health and coping skills, and assistance for Duchenne families.

Virginia Kimonis, MD, MRCP

Professor, Department of Pediatrics, Division of Genetics and Genomic Medicine

University of California, Irvine Medical Center, Children’s Hospital of Orange County

Lauren Morgenroth, MS, CGC

Chief Operating Officer


Ashley Yee, MSW

Director of Patient Engagement

Global Genes

Laurie Miller, CSW

Clinical Social Worker

Children's Hospital of Los Angeles

Leona Filis

Special Needs Attorney

The Filis Law Firm, P.C.

Kelly Maynard


The Duchenne Family Assistance Program

Marissa Penrod


The Duchenne Family Assistance Program

2024 FUTURES – Clinical Trial Design, Lessons Learned and Implications for the Future

An analysis of combined clinical trial data and what it can teach about clinical trial design. What has gone right and what should be changed in the future?

Lauren Morgenroth, MS, CGC

Chief Operating Officer


Barry Byrne, MD, PhD

Professor and Associate Chair

University of Florida, Department of Pediatrics

Susan J Ward, PhD

Founder and Executive Director


DMD Clinical Trials: An Overview

This resource presents information on the clinical trial process, common clinical trial terms, updated trial processes due to telehealth, and more.

Lauren Morgenroth, MS, CGC

Chief Operating Officer


Ana Christensen, MPH

Lead Project Manager, Strategic Solutions


The Family’s Role in Research Panel

A deep dive into the world of clinical and academic research, including input from multiple stakeholders, with the family at the center of it all.

Matthew Alexander, PhD

Assistant Professor in Pediatric Neurology and Genetics

Children’s of Alabama | University of Alabama at Birmingham

Diana Castro, MD

Associate Professor of Pediatrics, Neurology and Neurotherapeutics

University of Texas Southwestern

Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

Joanna Kemp, BSN, RN

Senior Director of Clinical Operations | Director, CureDuchenne Link


Lauren Morgenroth, MS, CGC

Chief Operating Officer


Clint & Leslie Porter

CureDuchenne Champion Family