Title: Lead Project Manager, Strategic Solutions
Organization: TRiNDS
Bio: Ana Christensen, MPH, is Lead Project Manager in TRiNDS’ Strategic Solutions. Ana has been working in pediatric clinical research for 15 years, and in neuromuscular research for over 12. Ana joined TRiNDS in 2018, where her work has centered on engaging with families and communities in rare disease clinical trials and research studies.
This panel discussion provides a robust conversation about how clinical trials intersect with family life in the Duchenne community.
This resource presents information on the clinical trial process, common clinical trial terms, updated trial processes due to telehealth, and more.
CureDuchenne Link is a centralized data hub which combines clinical data, biosamples, and patient reported data for individuals with Duchenne and Becker muscular dystrophy, as well as carriers. Information and samples provided by participants are coded and available for use by approved researchers across the world.
CureDuchenne Link es un centro de datos centralizado que combina datos clínicos, biomuestras y datos informados por pacientes para personas con distrofia muscular de Duchenne y Becker, así como portadores. La información y las muestras proporcionadas por los participantes están codificadas y disponibles para su uso por investigadores aprobados en todo el mundo.