A Holistic View of Clinical Trials
This panel discussion provides a robust conversation about how clinical trials intersect with family life in the Duchenne community.
Title: Family, Duchenne Advocate
Organization: Family, Duchenne Advocate
Bio: Leslie Porter is an advocate, caregiver and facilitator for her family. She is the wife of Clint, mother of Grant, age 10, who has DMD, and daughter, Wrenna, age 7. Leslie is a carrier of DMD and she is an attorney who previously worked as a prosecutor in Oklahoma.
This panel discussion provides a robust conversation about how clinical trials intersect with family life in the Duchenne community.
From FUTURES 2023
Social Worker
UT Health Austin Pediatric Neurosciences at Dell Children's
Associate Professor of Pediatrics, Neurology and Neurotherapeutics
University of Texas Southwestern
Post Doctoral Fellow
University of Arkansas for Medical Sciences
An interactive discussion on the unique journey of caregivers, and tools to unite and strengthen the Duchenne community in their shared experience.
Una discusión interactiva sobre el viaje único de los cuidadores y herramientas para unir y fortalecer a la comunidad de Duchenne en su experiencia compartida.