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Beginning the Duchenne Journey 

From FUTURES 2023

 

  • Coping as a Caregiver
  • Communicating Duchenne to your child/family
  • ​Preparing for a bright future: play, communicate, and appropriate exercise
  • Neurological concerns
  • Introducing Stretching and Equipment
  • Role of Social Work
  • Duchenne’s Impact on Nutritional Health and Habits

Kayla Richards, LMSW

Social Worker

UT Health Austin Pediatric Neurosciences at Dell Children's

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Doug Levine, PT

CureDuchenne Certified Physical Therapist

CureDuchenne

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Leslie Porter

Family, Duchenne Advocate

Family, Duchenne Advocate

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Diana Castro, MD

Associate Professor of Pediatrics, Neurology and Neurotherapeutics

University of Texas Southwestern

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Kindann Fawcett, PhD

Post Doctoral Fellow

University of Arkansas for Medical Sciences

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Beginning the Journey - diagnosed 0-3 yearsGrowth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years

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