Diana Castro, MD

Title: Associate Professor of Pediatrics, Neurology and Neurotherapeutics

Organization: University of Texas Southwestern

Bio: Since completing training in pediatric neuromuscular medicine, Dr. Castro has conducted multiple clinical research trials, as principal investigator in Spinal Muscular Atrophy (SMA), Duchenne Muscular Dystrophy (DMD), and Charcot-Marie-Tooth (CMT). The pediatric neuromuscular research group at Children’s Health is very active, currently running over 18 clinical trials, including natural history and treatment-related studies. Dr. Castro is the director of the Pediatric Neuromuscular Division.

2023 FUTURES: Trailblazers The Future of Care Panel

A panel discussion featuring leading healthcare providers that are making a positive impact on variety of aspects of care for Duchenne.

Natalie Truba, PhD

Clinical Psychologist

Nationwide Children's Hospital

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Pradeep P.A. Mammen, MD, FACC, FAHA

Associate Professor of Medicine and Co-Director

Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center, Director for Translational Research for the Advanced Heart Failure and Transplant Cardiology Program, UT Southwestern Medical Center

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Diana Castro, MD

Associate Professor of Pediatrics, Neurology and Neurotherapeutics

University of Texas Southwestern

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Richard Parad, MD, MPH

Associate Professor of Pediatrics / Department of Pediatric Newborn Medicine Harvard Medical School Department of Pediatrics / Brigham and Women's Hospital

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2024 FUTURES Steroid Use

Breakout Session: A Steroid Discussion, One Disease, Many Paths

With more choices available, what should families consider? A panel breakout session to help families navigate the steroid journey, make informed choices, and proactively respond to side-effects.

Diana Castro, MD

Associate Professor of Pediatrics, Neurology and Neurotherapeutics

University of Texas Southwestern

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Nat Nasomyont

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Sheryl Marrazzo

Duchenne Mother, Grandmother and Advocate

4 Jake's Sake | CureDuchenne

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Patricia Brown

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Beginning the Journey - diagnosed 0-3 yearsGrowth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years

Beginning the Duchenne Journey 

From FUTURES 2023

 

  • Coping as a Caregiver
  • Communicating Duchenne to your child/family
  • ​Preparing for a bright future: play, communicate, and appropriate exercise
  • Neurological concerns
  • Introducing Stretching and Equipment
  • Role of Social Work
  • Duchenne’s Impact on Nutritional Health and Habits

Kayla Richards, LMSW

Social Worker

UT Health Austin Pediatric Neurosciences at Dell Children's

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Doug Levine, PT

CureDuchenne Certified Physical Therapist

CureDuchenne

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Leslie Porter

Family, Duchenne Advocate

Family, Duchenne Advocate

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Diana Castro, MD

Associate Professor of Pediatrics, Neurology and Neurotherapeutics

University of Texas Southwestern

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Kindann Fawcett, PhD

Post Doctoral Fellow

University of Arkansas for Medical Sciences

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Conectando familias con la investigacion

El enfoque del seminario web de hoy es ayudar a educar y conectar a las familias con el panorama de los ensayos clínicos.

Amaris Sánchez-Larragoity, PsyD

Psicóloga licenciada

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Diana Castro, MD

Associate Professor of Pediatrics, Neurology and Neurotherapeutics

University of Texas Southwestern

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Beginning the Journey - diagnosed 0-3 yearsGrowth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years

Pilares del viaje temprano

Esta sesión está dirigida a familias/cuidadores de niños y adolescentes con Duchenne. Cubre cuatro pilares del viaje temprano de Duchenne: atención multidisciplinaria, esteroides, nutrición y participación en ensayos clínicos, y es seguido por una sesión de discusión/preguntas y respuestas.

Kindann Fawcett, PhD

Post Doctoral Fellow

University of Arkansas for Medical Sciences

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Barry Byrne, MD, PhD

Professor and Associate Chair

University of Florida, Department of Pediatrics

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Dr. Aravindhan Veerapandiyan

Pediatric Neurologist

Arkansas Children's Hospital

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Diana Castro, MD

Associate Professor of Pediatrics, Neurology and Neurotherapeutics

University of Texas Southwestern

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Beginning the Journey - diagnosed 0-3 years

Pillars of the Early Journey

This session is intended for families/caregivers of children and adolescents with Duchenne. It covers four pillars of the early Duchenne journey: Multidisciplinary Care, Steroids, Nutrition, and Involvement in Clinical Trials, and is followed by a discussion/Q&A session.

Barry Byrne, MD, PhD

Professor and Associate Chair

University of Florida, Department of Pediatrics

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Diana Castro, MD

Associate Professor of Pediatrics, Neurology and Neurotherapeutics

University of Texas Southwestern

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Kindann Fawcett, PhD

Post Doctoral Fellow

University of Arkansas for Medical Sciences

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The Family’s Role in Research Panel

A deep dive into the world of clinical and academic research, including input from multiple stakeholders, with the family at the center of it all.

Matthew Alexander, PhD

Assistant Professor in Pediatric Neurology and Genetics

Children’s of Alabama | University of Alabama at Birmingham

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Diana Castro, MD

Associate Professor of Pediatrics, Neurology and Neurotherapeutics

University of Texas Southwestern

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Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

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Joanna Kemp, BSN, RN

Senior Director of Clinical Operations | Director, CureDuchenne Link

CureDuchenne

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Lauren Morgenroth, MS, CGC

Chief Operating Officer

TRiNDS

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Clint & Leslie Porter

CureDuchenne Champion Family

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Beginning the Journey - diagnosed 0-3 yearsGrowth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years