Joanna Kemp, BSN, RN

Title: Senior Director of Clinical Operations | Director, CureDuchenne Link

Organization: CureDuchenne

Bio: Joanna Kemp is a licensed registered nurse, holding a Bachelor of Science in Nursing from the University of Pennsylvania. She has spent over a decade working in clinical trials, both as a research nurse and in leadership roles. She is the project director of CureDuchenne Link, a nationwide data hub which combines clinical data, biosamples, and patient-reported data for individuals with Duchenne and Becker muscular dystrophy, as well as carriers.

The Family’s Role in Research Panel

A deep dive into the world of clinical and academic research, including input from multiple stakeholders, with the family at the center of it all.

Matthew Alexander, PhD

Assistant Professor in Pediatric Neurology and Genetics

Children’s of Alabama | University of Alabama at Birmingham

Diana Castro, MD

Associate Professor of Pediatrics, Neurology and Neurotherapeutics

University of Texas Southwestern

Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

Joanna Kemp, BSN, RN

Senior Director of Clinical Operations | Director, CureDuchenne Link


Lauren Morgenroth, MS, CGC

Chief Operating Officer


Clint & Leslie Porter

CureDuchenne Champion Family