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STAT: A decade ago, these drugs tore apart the FDA. Today might be some patients’ best hope.
By Jason Mast
Rethinking Exercise in Duchenne Muscular Dystrophy: What New PT/OT Research Means for Families
Emerging guidance offers cautious optimism—here’s what parents and caregivers should know For years, families affected by Duchenne muscular dystrophy have heard a consistent message: “be cautious with exercise, don’t overdo it.” That guidance came from a […]
CureDuchenne invests in Satellos as it raises $57.2M to advance their Duchenne program through clinical trials
CureDuchenne Invests in Satellos to Advance a Mutation-Independent Duchenne TherapyLink to press release CureDuchenne is pleased to announce that it has participated in the Satellos Bioscience public offering, supporting the […]
Duchenne Newborn Screening Moves Forward: Celebrating Progress
The addition of Duchenne muscular dystrophy (DMD) to the Recommended Uniform Screening Panel (RUSP) marks a meaningful step forward in the effort to diagnose Duchenne earlier and connect families to […]
Conoce a Rosalia Sandoval Garcia
Rosalia es una orgullosa mamá de Joe (8), quien vive con Duchenne, y de Sophia (6). Ella misma vive con distrofinopatía, lo que hace que esta misión sea especialmente cercana […]
DUCHENNE TRAVEL TIPS
DUCHENNE TRAVEL TIPS:
The Golden Rule is Plan Ahead
Contact the airline ahead of time to approve medical or mobility devices.
Request special travel assistance like checking a scooter or power wheelchair.
Coordinate local transportation and other logistics at your destination.
Research ride options and reserve or rent a wheelchair-accessible van in advance.
Support World Duchenne Awareness Day with CureDuchenne
World Duchenne Day 2025
Avidity’s New Access Program Marks a Milestone for the Duchenne Community
In 2018, CureDuchenne was the only Duchenne-focused organization to invest in Avidity Biosciences, recognizing the potential of their novel RNA-targeting approach for individuals with Duchenne muscular dystrophy long before it reached clinical trials. […]
Physical Therapy Can Make All the Difference in Duchenne
Record-Breaking Impact During World Duchenne Awareness Month Each September, World Duchenne Awareness Month shines a spotlight on the urgent needs and powerful momentum within our community. This year, CureDuchenne’s Physical and Occupational Therapy Certification […]