Cart
×
Former Ducks Captain Continues to Fight Off the Ice to Find a Cure for Duchenne
An interview with the Millers and Ryan Getzlaf discussing the Getzlaf Golf Shootout that originally aired on NBC4
6 Things Your Special Needs Mom Friends Want You to Know
I’m blessed to have many amazing friends in my life. As a Duchenne mom, I find myself needing their support and love more and more as time passes. I’m so grateful […]
Get in the Game
Accessible gaming for people with Duchenne Individuals with Duchenne are living at a time when technology is helping to make the digital world more accessible and the real world more […]
Nationwide’s Success Has a Broad Impact on Duchenne Research
Kevin Flanigan, MD is a leading expert in the development of gene therapies for Duchenne, and the director of the Center for Gene Therapy in the Abigail Wexner Research Institute […]
Nomination package submitted to add Duchenne to the Recommended Uniform Screening Panel (RUSP)
Duchenne muscular dystrophy was nominated to be added to the Recommended Uniform Screening Panel (RUSP), a list of disorders that are screened for at birth. This is an important step […]
Finding A Way on Father’s Day
Happy Father’s Day to all of the dads out there who have either found a way – or made one – so that their kids can experience their best life.
– Paul Miller, aka Hawken’s dad
Books About Duchenne For Children and Parents
Enjoy this hand-picked selection of books about Duchenne muscular dystrophy for children and parents. This list was shared at the 2022 FUTURES National Conference in Orlando, FL. (Duchenne Community Bookstore […]
Code Bio and Takeda to Develop Gene Therapies for Rare Diseases
We’re thrilled to share news about Code Biotherapeutics, a company pioneering targeted non-viral delivery of genetic medicines. CureDuchenne’s April 2021 research investment into Code Biotherapeutics was based on extensive preclinical […]
CureDuchenne Link at NORD Breakthrough Summit 2021
The 2021 National Organization for Rare Disorders (NORD) Breakthrough Summit saw a number of innovations unveiled for the rare disease community. RareDisease Advisor was there to cover the highlights of […]