See the previous update from June 22, 2023 here FDA Grants Traditional Approval for Ambulatory Individuals and Accelerated Approval for Non-Ambulatory Individuals to Sarepta Therapeutics’ ELEVIDYS Gene Therapy for Duchenne […]
As we prepare to welcome families to the CureDuchenne FUTURES Annual Conference, scientific leaders, executives from nearly every pharmaceutical and biotech company focused on developing therapies for Duchenne and Becker […]
CureDuchenne is here to support you. See these resources to be ready in an emergency.
Disney Parks can be great places for someone with a power wheelchair to enjoy the various characters roaming around the park, rides that you can drive your chair onto, and parades and performances.
We recently visited Disneyland with two Disney fans in power wheelchairs to see how it can be done. While it takes extra planning, strategy, and teamwork from friends, enjoying rides at Disneyland, including Rise of the Resistance, is possible even if you use a power wheelchair.
If you have a desire to drive with Duchenne muscular dystrophy or be a passenger in a wheelchair-accessible vehicle, there are plenty of opportunities to make that dream a reality.
Dealing with a fracture is a frightening experience for anyone, especially someone living with Duchenne muscular dystrophy, who has weaker bones and is more prone to falling. Often, you will […]
This past year the CureDuchenne Clinic at the Neurology & Neuromuscular Care Center, led by Dr. Diana Castro in Denton, TX, has been marked by unparalleled advancements, notably with the […]
By Jennifer Wallace, PT and Doug Levine, PT Introduction Duchenne muscular dystrophy (DMD) is a neuromuscular disorder that affects an estimated 1 in 5,000 live male births and is largely […]
Going to college can be a life changing experience – from meeting new friends to expanding your knowledge to learning more about yourself. It can also be especially challenging while […]
