CureDuchenne Blog

Mother Day Blog

How to be a good friend to a Duchenne mom this Mother’s Day

Those gestures that you call “little things” are not little to us. The way you text or call just to check in makes me feel cared for. The cards you send when something heartbreaking has happened, makes me feel loved. The prayers you say for us when we aren’t even aware, the hugs, the long conversations we have – those are not little in my eyes. In fact, those are the very things that often keep me afloat somedays, and remind moms like me that we are not alone.  

accessible gaming

Get in the Game

Accessible gaming for people with Duchenne Individuals with Duchenne are living at a time when technology is helping to make the digital world more accessible and the real world more […]

Finding A Way on Father’s Day

Happy Father’s Day to all of the dads out there who have either found a way – or made one – so that their kids can experience their best life.

– Paul Miller, aka Hawken’s dad

Books About Duchenne For Children and Parents

Enjoy this hand-picked selection of books about Duchenne muscular dystrophy for children and parents. This list was shared at the 2022 FUTURES National Conference in Orlando, FL. (Duchenne Community Bookstore […]

CureDuchenne Joins AMP BGTC

CureDuchenne joins forces with NIH, FDA, and private organizations to increase effective gene therapies for rare diseases CureDuchenne is delighted to be a partner in the Accelerating Medicines Partnership Bespoke […]