Those gestures that you call “little things” are not little to us. The way you text or call just to check in makes me feel cared for. The cards you send when something heartbreaking has happened, makes me feel loved. The prayers you say for us when we aren’t even aware, the hugs, the long conversations we have – those are not little in my eyes. In fact, those are the very things that often keep me afloat somedays, and remind moms like me that we are not alone.
Accessible gaming for people with Duchenne Individuals with Duchenne are living at a time when technology is helping to make the digital world more accessible and the real world more […]
Kevin Flanigan, MD is a leading expert in the development of gene therapies for Duchenne, and the director of the Center for Gene Therapy in the Abigail Wexner Research Institute […]
Duchenne muscular dystrophy was nominated to be added to the Recommended Uniform Screening Panel (RUSP), a list of disorders that are screened for at birth. This is an important step […]
Happy Father’s Day to all of the dads out there who have either found a way – or made one – so that their kids can experience their best life.
– Paul Miller, aka Hawken’s dad
Enjoy this hand-picked selection of books about Duchenne muscular dystrophy for children and parents. This list was shared at the 2022 FUTURES National Conference in Orlando, FL. (Duchenne Community Bookstore […]
We’re thrilled to share news about Code Biotherapeutics, a company pioneering targeted non-viral delivery of genetic medicines. CureDuchenne’s April 2021 research investment into Code Biotherapeutics was based on extensive preclinical […]
The 2021 National Organization for Rare Disorders (NORD) Breakthrough Summit saw a number of innovations unveiled for the rare disease community. RareDisease Advisor was there to cover the highlights of […]
CureDuchenne joins forces with NIH, FDA, and private organizations to increase effective gene therapies for rare diseases CureDuchenne is delighted to be a partner in the Accelerating Medicines Partnership Bespoke […]
