WORKSHOP | Raleigh, NC
The Westin Raleigh-Durham Airport | Join us for a full-day event focused on improving the quality of life for individuals living with Duchenne. PRESENTATIONS INCLUDE: Standards of Care | Family […]
WORKSHOP | Atlanta, GA
Atlanta Marriott Buckhead Hotel & Conference Center | Join us for a full-day event focused on improving the quality of life for individuals living with Duchenne. PRESENTATIONS INCLUDE: Standards of […]
WEBINAR: Advancing the Promise of FORCE to Deliver for Patients
Dyne Therapeutics will present initial clinical data, first released on January 3rd, 2024, from the DELIVER trial of DYNE-251 in patients with Duchenne muscular dystrophy (DMD) who are amenable to […]
Ask Me Anything: Fractures and Fatty Embolism Syndrome (FES) with Dr. Brenda Wong
Ask Me Anything: Emergency Care - FES (fatty embolism syndrome) with Dr. Brenda Wong 9:00-10:00AM PST 12:00-1:00PM EST This series is an interactive Q&A between families in the Duchenne community […]
CAREGIVER DINNER SESSION | Charlotte, NC
Eddie V's | Join us for a casual and complimentary dinner. Let's talk about your family's story, health and wellness, coping and overall disease management. 101 S Tryon Street, […]
WORKSHOP | Baltimore, MD
Baltimore Marriott Inner Harbor at Camden Yards | Join us for a full-day event focused on improving the quality of life for individuals living with Duchenne. PRESENTATIONS INCLUDE: Standards of […]
Ask Me Anything: Traveling with Duchenne with Marissa Penrod, Adam Malone, and Alan Chaulet
Ask Me Anything: Traveling with Duchenne with Marissa Penrod 10:00AM PST 1:00PM EST Are you ready for an exciting and informative conversation about traveling with Duchenne? Join us as we […]
WEBINAR | ITF Therapeutics: Introducing DUVYZAT™ (givinostat)
CureDuchenne Community Webinar Update with ITF Therapeutics: Introducing DUVYZAT™ (givinostat) Meet members of the ITF Therapeutics team to learn more about their organization and the next steps to support the […]
WORKSHOP | Long Island, NY
Marriott Melville Long Island | Join us for a full-day event focused on improving the quality of life for individuals living with Duchenne. PRESENTATIONS INCLUDE: Standards of Care | Family […]
CAREGIVER DINNER SESSION | Pittsburgh, PA
Grand Concourse | Join us for an intimate, in-person dinner with families focused on caregiver mental health and well-being. This is a complimentary dinner. 100 W Station Square Dr, Pittsburgh, […]