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Family Resource Guide
A comprehensive guide to CureDuchenne’s programs, family services and areas of support.
Welcome to the Family Resource Guide directory. The links below give you quick access to CureDuchenne’s family support tools. Please reach out to Cares@CureDuchenne.org for any additional information, support, or to share your story with us. We are here for you.
CureDuchenne Cares Events
These family-focused events aim to educate, update, and connect families across the world.
Newly Diagnosed Support System
We have a special support system for families who are just beginning their journey. Access a step-by-step guide for newly diagnosed families below or email Cares@CureDuchenne.org to speak with a member of our team.
Physical Therapy Support
Our Physical Therapy Program provides family-focused resources to support your needs at all stages. Areas of support include:
Durable Medical Equipment Guide | Stretching and Transfer Videos| Activity Guides | School Resources | Find a Local CureDuchenne Certified PT | Training for Physical Therapists
The CureDuchenne Resource Library
A user-friendly hub of information and educational tools for families and health care providers.
CureDuchenne Emergency Care and Safety Information
Comprehensive emergency guidelines for families and Emergency Department staff
Medical ID Bracelets
Medical ID bracelets communicate important information about Duchenne and its potential complications to EMS professionals in urgent medical situations. They bracelets come pre-loaded with information about Duchenne and can be customized to add your/your child’s medical information.
Driving Research for the Cure
Our aim is to keep the research pipeline full to ensure the Duchenne community has multiple shots on goal.
CureDuchenne 1:1 – A Family Guidance Program
Our family guidance program provides individualized, unbiased information and advice from experts in the following areas:
Scientists | Physical Therapists | Duchenne Parents | Family Resource Coordinators | School/IEP Support | Fundraising Team
We also assist in connecting families to others in the Duchenne community, navigating the clinical trial landscape, educating your local school/community on Duchenne, and much more.
Join the CureDuchenne Family
By completing this form, we will be able to provide you with regular correspondence surrounding critical updates, announcements, upcoming events, and more.
Want to spread the word about CureDuchenne’s Clinic Busy Bags Program?
Request them for your clinic by emailing Cares@CureDuchenne.org.
Post a photo and testimonial to Facebook and tag CureDuchenne!