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Better Designed Clinical Trials Now
As a parent of a son with Duchenne I have been frustrated that the data presented to the FDA does not match the patient experience. I personally know so […]
cTAP Announces Two Research Publications Categorizing and Predicting Disease Prediction in Duchenne Muscular Dystrophy
The Collaborative Trajectory Analysis Project (cTAP), a public-private partnership to accelerate data science solutions to critical problems in drug development for Duchenne Muscular Dystrophy (Duchenne), today announced the publication of two research studies with important implications for the design of effective clinical trials.
“The CureDuchenne Cares program is one of the most impactful courses I’ve ever taken. This program has empowered me to become the best physical therapist that a Duchenne patient and their family needs…”
Every Duchenne parent wants to know that their child is in good hands with their medical team. Physical therapy is an important part of that medical team, and Texas physical […]
CureDuchenne To Host Webinar With Marathon Pharmaceuticals on November 1 to Update the Duchenne Community on Deflazacort Access and Regulatory Status
NEWPORT BEACH, CA. October 25, 2016 – CureDuchenne, a nonprofit dedicated to funding research and improving patient care for Duchenne muscular dystrophy, will host an informational webinar on November 1, […]
Nonprofits, Pharmaceutical Companies and Noted Clinicians Join to Launch the Collaborative Trajectory Analysis Project (cTAP), Advancing Clinical Trial Design for Duchenne Muscular Dystrophy
Consortium Working Together to Bring Quality of Life Treatments to the Duchenne Community NEWPORT BEACH, Calif., October 25, 2016 – The next wave in tackling Duchenne Muscular Dystrophy is getting […]
Spotlight on Jerry Hsu, PT, CureDuchenne Cares Certified Physical Therapist
A physical therapist is required to take on multiple roles while caring for their patients, and this is especially true when treating a complex condition such as Duchenne muscular […]
Latest Duplication Research Update for Duchenne Webinar
CureDuchenne hosted a webinar with Dr. Kevin Flanigan from Nationwide Children’s Hospital on October 12, 2016. The webinar was an opportunity for the Duchenne community to learn the most recent status of Dr. Flanigan’s duplication mutation research. Dr. Flanigan presented new data on his duplication 2 research.
Learn. Engage. Empower.
Caring for a child with Duchenne can be daunting, complicated, and often times, isolating. But it doesn’t have to be. On October 22, CureDuchenne Cares will hold its inaugural Family […]
CureDuchenne to Host a Webinar on Duplication Research for Duchenne with Dr. Flanigan From Nationwide Children’s Hospital on October 12
NEWPORT BEACH, Calif., October 7, 2016: CureDuchenne, a nonprofit dedicated to funding research and improving patient care for Duchenne muscular dystrophy, will host a webinar with Dr. Kevin Flanigan from […]