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movie posters for a man in a wheelchair and his caregiver riding on a back, a boy wearing an astronaut helmet with his parent and a man in a wheelchair with a middle-aged man on the left and young woman on the right

Read and Watch These Four Stories About Disability This Holiday Season

November 2, 2023

The silver screen has been featuring more and more stories about people with disabilities, whether it be developmental, physical, or mental. With more representation in popular culture, comes more understanding […]

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Community Letter: EMBARK Part 1 Topline Results

October 30, 2023

Sarepta Therapeutics announced topline results from EMBARK

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CureDuchenne Investments

CureDuchenne Welcomes New Executive Director, Vice President of Medical Affairs, and Board Members

October 24, 2023

Leading Duchenne Muscular Dystrophy Nonprofit Strengthens Leadership Team and Board Expertise

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Santhera Receives Positive CHMP Opinion Recommending Approval of AGAMREE® (vamorolone) for the Treatment of Duchenne Muscular Dystrophy 

October 13, 2023

The Committee for Medicinal Products for Human Use (CHMP) has given a positive recommendation for AGAMREE’s approval in Europe.

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Edgewise Therapeutics Announces Initiation of GRAND CANYON, a Global Pivotal Study of EDG-5506 in Becker Muscular Dystrophy (Becker)

September 26, 2023

– GRAND CANYON is the first pivotal study of an investigational therapy for Becker–– CANYON, the initial Phase 2 cohorts, is fully enrolled – BOULDER, Colo.–(BUSINESS WIRE)– Edgewise Therapeutics, Inc. (Nasdaq: […]

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CureDuchenne Investments

Austin Community Raises More Than $60,000 to Benefit CureDuchenne at Annual Ladies Luncheon  

September 25, 2023

The “Afternoon in Palm Beach” Themed Event Raised Funds and Awareness for Duchenne Muscular Dystrophy   AUSTIN, Texas (September 22, 2023) – Leading global nonprofit CureDuchenne held the annual Ladies Luncheon […]

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Duchenne treatment

Entrada Therapeutics Announces First Participant Dosed in its Phase 1 Clinical Trial of ENTR-601-44

September 21, 2023

See Previous News Release – Initiation of Phase 1 clinical trial marks Entrada’s transition into a clinical company – – Data anticipated in the second half of 2024 – BOSTON, […]

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CureDuchenne Investments

NHL All-Star Ryan Getzlaf and CureDuchenne Raise More than $500,000 at 12th Annual Getzlaf Golf Shootout

September 19, 2023

Funds Support Global Nonprofit’s Mission of Finding a Cure for Duchenne Muscular Dystrophy  NEWPORT BEACH, Calif., (September 19, 2023) – CureDuchenne, a leading global nonprofit focused on finding and funding […]

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CureDuchenne Investments

CureDuchenne Launches the CureDuchenne Caregiver Course: A Free Virtual Resource for Duchenne Muscular Dystrophy Caregivers 

September 19, 2023

NEWPORT BEACH, Calif., (September 19, 2023) — CureDuchenne, a leading nonprofit organization dedicated to advancing research and improving the lives of individuals affected by Duchenne muscular dystrophy, is proud to […]

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CureDuchenne is a 501c3 registered tax-exempt nonprofit organization. Federal Tax ID: #20-0299958 | ©2026 CureDuchenne. All rights reserved.

Please be advised that the contents within the CureDuchenne site include a compilation of articles, advisements, and references from the community. CureDuchenne does not provide medical advice nor is CureDuchenne a medical provider. The intent of this shared content is to serve as a point of reference for informational purposes. Please refer to your health care provider(s) for your individualized, specific care management needs. The CureDuchenne website may contain links to external websites that are not provided and/or maintained by or in any way affiliated with CureDuchenne. CureDuchenne recommends that you review the terms of service and privacy policies of these external websites before entering. Please note that CureDuchenne does not guarantee the accuracy, relevance, timeliness, or completeness of any information on these external websites.

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