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Avidity Biosciences Announces Phase 1/2 EXPLORE44™ Trial of AOC 1044 for Duchenne Muscular Dystrophy Mutations Amenable to Exon 44 Skipping

October 12, 2022

CureDuchenne, as an early investor in Avidity Biosciences, is excited to share the announcement of the Phase 1/2 EXPLORE44™ clinical trial of AOC 1044 in healthy volunteers and participants with […]

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CureDuchenne Launches Occupational Therapist Certification Program  to Improve Care for Individuals with Duchenne Muscular Dystrophy

October 10, 2022

Leading Global Nonprofit Expands Professional Training Program to Meet Specialized Needs of Individuals with the Neuromuscular Disease NEWPORT BEACH, Calif., (October 10, 2022) – CureDuchenne, a global leader in research, […]

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CureDuchenne Hosts Eighth Annual Napa in Newport to Help Find a Cure for Duchenne Muscular Dystrophy

October 7, 2022

Southern California’s Premier Wine Event Brings Together Acclaimed Napa Valley Vintners Under One Roof to Raise Funds for CureDuchenne NEWPORT BEACH Calif., September 29, 2022 – CureDuchenne and Vintner Chair Dana Estates will host […]

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Austin Community Comes Together
to Raise $75,000 for CureDuchenne at Annual Ladies Luncheon

October 4, 2022

Palm Springs-themed Event Supports Global Nonprofit Focused on Finding and Funding a Cure for Duchenne Muscular Dystrophy NEWPORT BEACH, Calif., (September 23, 2022) – CureDuchenne, a leading global nonprofit focused […]

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Santhera Submits Marketing Authorization Application to the European Medicines Agency for Vamorolone in Duchenne Muscular Dystrophy 

October 3, 2022

 At the core of the MAA submission are positive data from the pivotal Phase 2b VISION-DMD study which comprised a (1) 24-week period to demonstrate efficacy and safety of vamorolone […]

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Sarepta Therapeutics Submits Biologics License Application for SRP-9001 for the Treatment of Ambulant Patients with Duchenne Muscular Dystrophy

September 29, 2022

09/29/22 8:30 AM EDT CAMBRIDGE, Mass., Sept. 29, 2022 (GLOBE NEWSWIRE) — Sarepta Therapeutics, Inc. (NASDAQ:SRPT), the leader in precision genetic medicine for rare diseases, today announced that it has […]

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Avidity Biosciences Announces FDA Partial Clinical Hold on New Participant Enrollment in Phase 1/2 MARINA™ Trial

September 27, 2022

Participants currently enrolled in MARINA and MARINA-OLE™ trials may continue to be treated with AOC 1001 Avidity received Investigational New Drug (IND) clearance for FSHD and DMD studies from FDA; programs […]

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NHL All-Star Ryan Getzlaf and CureDuchenne Raise $750,000 at 11th Annual Getzlaf Golf Shootout

September 22, 2022

NHL All-Star Ryan Getzlaf Joins Forces with Global Nonprofit to Help Find a Cure for Duchenne Muscular Dystrophy NEWPORT BEACH, Calif., (September 20, 2022) – CureDuchenne, a leading global nonprofit […]

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Italfarmaco Webinar: Givinostat Development Program Updates

September 21, 2022

Dr. Paolo Bettica will review recently completed study analysis for the Italfarmaco Phase 3 randomized controlled trial of givinostat in boys with Duchenne muscular dystrophy (DMD). He will answer your […]

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