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Faster Cures Innovator Spotlight Features Cure Duchenne

July 24, 2014

FasterCures features a Q&A with Debra Miller, founder and CEO of CureDuchenne, in their Innovator Spotlight. FasterCures, a center of the Milken Institute, is an action tank driven by a […]

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Help Accelerate Research by Donating Blood

July 21, 2014

  Duchenne families: If you have Duchenne muscular dystrophy and are between the ages 18-25 years old, or if you have a son with Duchenne that age, you can help […]

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Duchenne Duplication and Rare Mutations

July 16, 2014

Several years ago, soon after our son, Hawken’s diagnosis of Duchenne, I was at a conference, and full of mutation envy. Our son has a deletion of exon 45 and […]

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Climb to Cure Duchenne: Hike Mt. Adams with Tyler Armstrong August 22-24

July 10, 2014

Tyler Armstrong, 10, will be climbing Mt. Adams as a training climb in preparation for reaching the Seven Summits. Tyler has already climbed two of the Seven Summits – Mt. Kilimanjaro and […]

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79 Days of Duchenne: 79 Videos Raising Awareness to Find a Cure for Duchenne Muscular Dystrophy

July 9, 2014

CureDuchenne is pleased to launch the 79 Days of Duchenne project with Sarah Burgess, singer-songwriter and contestant on the sixth season of American Idol. More than 79 talented individuals created […]

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Prosensa Completes Enrollment in Natural History Study of Duchenne Muscular Dystrophy

June 25, 2014

      Leiden, The Netherlands, June 25, 2014 (GLOBE NEWSWIRE) — Prosensa Holding N.V. (NASDAQ: RNA), the Dutch biopharmaceutical company focusing on RNA-modulating therapeutics for rare diseases with high […]

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CureDuchenne Media Statement Regarding Prosensa Announcement of Regulatory Path Forward for Drisapersen as a Potential Treatment for DMD

June 3, 2014

      CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, issued the following statement today regarding the announcement by Prosensa […]

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PTC THERAPEUTICS RECEIVES POSITIVE OPINION FROM CHMP FOR TRANSLARNA™ (ATALUREN)

May 23, 2014

PTC Therapeutics announced this morning that they have received a positive opinion from the Committee for Medicinal Products for Human Use (CHMP) of the European Medicines Agency, regarding the company’s […]

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Prosensa Update: Regulatory Discussions Ongoing & Re-dosing on Track

May 22, 2014

      Dear Patient Group Representative,   We trust this letter finds you well. As announced in a press release and during our quarterly update for the financial community […]

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