Webinars: Insights on Duchenne muscular dystrophy (DMD) from leading experts.
Join us as we continue this educational series through a new lens: Quality of Life. This webinar will cover the following topics:Emergency Care | Dr. Stefan Malin, MD, MSNavigating “Re-entry” […]
Learn more about REGENXBIO’s new gene therapy program for the potential treatment of Duchenne. This webinar provides an overview of the company and RGX-202, a novel, advanced micro-dystrophin gene therapy […]
This webinar provides an update from Astellas on their study to assess the safety, tolerability, and preliminary efficacy of ASP0367 (MA-0211) for boys with Duchenne Muscular Dystrophy. You’ll be prompted […]
CureDuchenne’s webinar, COVID-19 Vaccines: What the Duchenne Community Needs to Know, was an opportunity for the Duchenne community to get reliable information on COVID-19 vaccines. A panel of experts from […]
Loss of bone density and strength is a common problem in Duchenne muscular dystrophy, and can lead to frequent fractures, chronic spine pain and deformity, and premature loss of ambulation. […]
Santhera discusses the SIDEROS interim analysis, presents results and answers questions from the community in this CureDuchenne Webinar: SIDEROS Interim Analysis – Outcomes and Key Learnings. You’ll be prompted to […]
Learn about PTC Cares™, a support program dedicated to helping patients, caregivers, and prescribers understand the prescription process, financial assistance, and insurance information for PTC products. You’ll be prompted to […]
La 2da parte incluirá los siguientes temas: Educación para el cuidador Sugerencias para los cuidadores – mejores prácticas físicas, mentales y emocionales Anécdota familia & construcción comunitaria Se le pedirá […]
La 1ra parte incluira los siguientes temas: Acceso al Cuidado Multidisciplinario Guia nutricional para Individuos con Duchenne Programa de Asistencia Familiar Duchenne (Duchenne Family Assistance Program) Se le pedirá que […]
