CureDuchenne Link Webinar: Power the Science

How You Can Help Researchers Find Treatments

UPDATE: This event has been postponed due to a last-minute issue and will need to be rescheduled.

Don’t miss this informative webinar on CureDuchenne Link: a combined patient registry and biobank that collects survey results, clinical data, medical records, genomic data and biosamples in a single database. Learn how this platform opens up vital resources to support a wide range of research, answers questions, and accelerates discovery to bring the community treatments faster.

Join us and learn why “Together, we WILL cure Duchenne” isn’t just a community tagline, it’s the foundation we must build on to achieve our goals.

Speaker Bios

Jessy Etienne – Stanford Post-Doctoral Fellow
“The Importance of CD Link to Aldehyde Dehydrogenase Research”

Jessy Etienne is a Stanford Post-Doctoral Fellow who is eager to discuss the importance of CureDuchenne Link to his research with aldehyde dehydrogenase, a polymorphic enzyme responsible for the oxidation of aldehydes to carboxylic acids, which leave the liver and are metabolized by the muscle and heart.

Leslie Porter – Duchenne Carrier & CD Link participant
“The Process of Participating in CD Link”

Leslie Porter is an advocate, caregiver and facilitator for her family. She is the wife of Clint, mother of Grant, age 11, who has DMD, and daughter, Wrenna, age 8. Leslie is a carrier of DMD and she is an attorney who previously worked as a prosecutor in Oklahoma.