In November 2016, two San Diego families received the same devastating news about their little boys. Four-year-old Yannick Etienne and 5-year-old Marko Filenko were each diagnosed with Duchenne muscular dystrophy, […]
Healthcare professionals, personal caregivers and family members of those with Duchenne muscular dystrophy gathered to learn about new data and best practices for steroid use in Duchenne at a webinar […]
Like many mothers of boys with muscular dystrophy, Deborah Hall hasn’t had an easy life. Hall, the daughter of a chemical engineer and a stay-at-home mom, was one of six […]
CRISPR-Cas9 has the ability to change everything about our world. Here’s why it’s awesome and why it’s scary. Outrage continues to grow over the news that Chinese scientist He Jiankui […]
CureDuchenne Webinar with Avidity Biosciences, a privately held biotech company pioneering a new class of precision medicines based upon antibody-oligonucleotide conjugates, to brief the Duchenne community about Avidity’s research in […]
DURHAM – Back in 2003, new mother Debra Miller with her husband, Paul, founded CureDuchenne after their only son was diagnosed with Duchenne, a rapidly progressing form of muscular dystrophy. No […]
Newport Beach, Calif. (November 5, 2018) – CureDuchenne, a global leader in research, patient care, and innovation in improving and extending the lives of those living with Duchenne muscular dystrophy […]
Investment advances pre-clinical development of novel exon skipping therapies for treatment of patients with Duchenne muscular dystrophy October 17, 2018 08:00 AM Eastern Daylight Time LA JOLLA, Calif.–(BUSINESS WIRE)–Avidity Biosciences, […]
Nonprofit invests in leading specialty prescription and prior authorization solution provider to get Duchenne patients breakthrough medications, faster October 17, 2018 08:00 AM Eastern Daylight Time BOSTON–(BUSINESS WIRE)–ZappRx, Inc., a […]
