Healthcare professionals, personal caregivers and family members of those with Duchenne muscular dystrophy gathered to learn about new data and best practices for steroid use in Duchenne at a webinar recorded on December 11.
This free web broadcast featured a dialog between three physician experts and an experienced Duchenne parent/caregiver. Participants were able to ask and answer questions in the interactive format.
Hosted by Emma Ciafaloni, M.D., University of Rochester Medical Center, the webinar featured a discussion of the latest data in steroid use, including questions about the standard of care and managing side effects. Interactive polling questions appeared throughout the program, and the webinar concluded with a Q&A session.
The program panel:
Emma Ciafaloni, M.D.: Professor of Neurology and Pediatrics, Director of Pediatric Neuromuscular Medicine, and Program Director of the ACGME Accredited Neuromuscular Medicine Fellowship Program, University of Rochester, Rochester, NY
John Brandsema, M.D.: Assistant Professor of Clinical Neurology at Perelman School of Medicine, University of Pennsylvania; Pediatric Neurologist and Neuromuscular Section Head, Children’s Hospital of Philadelphia, Philadelphia, PA
Katherine Mathews, M.D.: Vice Chair for Clinical Investigation, Department of Pediatrics, University of Iowa Children’s Hospital; Director of the Muscular Dystrophy Clinic, Director of the Iowa Neuromuscular Program, and Professor in the Departments of Pediatrics and Neurology, University of Iowa Carver College of Medicine, Iowa City, IA
Susan Turner, RN: Parent and caregiver to son who has Duchenne muscular dystrophy; per diem medical-surgical nurse, Bertrand Chaffee Hospital, Springville, NY; per diem local school nurse, Pioneer Central School District, Yorkshire, NY