As you may have read in the news, Sarepta Therapeutics today announced an update from the FDA on the review of SRP-9001, Sarepta’s experimental gene therapy for Duchenne muscular dystrophy. They shared the following information:
After her 10-month-old nephew was diagnosed with Duchenne muscular dystrophy, Karin Gorman was inspired to learn more about the disease and find a way to make a difference in the […]
To turn away from any member of the global Duchenne community would be to turn away from our own here at home. That’s why we at CureDuchenne, the non-profit […]
To say I have witnessed young men and boys with Duchenne face heartbreaking challenges is an understatement. Duchenne is one of the toughest diseases in the world. That’s why […]
On behalf of team CureDuchenne, we are ecstatic to announce that our co-founder and our daily inspiration Debra Miller was presented with the esteemed Women in Business Award to […]
For some people it takes a trophy or medal to denote a champion. For those in the fight against Duchenne Muscular Dystrophy, there are all kinds of champions and […]
79 Days…79 Videos…More than 79 talented individuals A sincere and heartfelt thank you to Sarah Burgess for her talent, creativity and inspiration in creating the 79 Days of Duchenne […]
Your dollar can save lives… CureDuchenne is pleased to launch the “Dollar 4 Duchenne” campaign today to fund research to find a cure for Duchenne muscular dystrophy. The “Dollar 4 […]
Our good friend Tyler Armstrong, 9, of Yorba Linda, Calif., will attempt a record breaking climb of Mt. Aconcagua in Argentina, the highest peak (22,837 ft.) in both the […]
