Yesterday, Fergie – a Grammy award-winning singer/songwriter, and new mom! – joined the ranks of talented and respected celebrities we love. Over the last few years, Clay Matthews, Ryan Getzlaf, Mack Brown and Scott Niedermayer have spoken out publicly in support of CureDuchenne. We are very touched by Fergie’s support. Fergie is appearing in a new public service announcement (PSA) on behalf of CureDuchenne. Fergie and her husband, actor Josh Duhamel, became new parents when they welcomed their son, Axl Jack into the world on August 29.
If you have a loved one who is afflicted with Duchenne, please join me in thanking Fergie by going to her Facebook page and telling her how much you appreciate her support. Celebrities like Fergie can make such a difference in our children’s lives by increasing awareness of this disease.
Duchenne is a well understood disease. We can see the faulty gene and we have ways to fix it. Right now the limiting factor in getting treatments out of the lab and into our children is funding. CureDuchenne has seven funding projects that have progressed to human clinical trials. CureDuchenne was the lead supporter of Prosensa, a Dutch biotech company that has licensed their drug, drisapersen, to GlaxoSmithKline and are now in the final stage clinical trials. CureDuchenne also provided critical funding to Sarepta, a U.S. biotech company which has completed its phase II trial for etiplersen.
We are proud to have supported both of these companies at crucial stages and these drugs could be the first ever approved for Duchenne, a fatal disease that has been with us forever.
All of us at CureDuchenne, and all Duchenne families around the world, thank you Fergie. And we wish you a lifetime of joy with Axl Jack. You really do rock!
Debra & Paul Miller
Parents of Hawken Miller