Books are a gateway for us to unlock our imaginations. To see ourselves in the characters that captivate our attention. To let our mind wander to places that wouldn’t have […]
Mother of two boys with Duchenne shares how she’s successfully advocated for her children with a rare disease as a mama bear.
Shopping for someone with a physical disability can seem difficult as this holiday season rolls around. They may not have the same strength or dexterity as other kids and/or adults […]
The U.S. FDA announced today its decision to approve AGAMREE (vamorolone), a new steroid for individuals with Duchenne muscular dystrophy 2 years or older. This approval comes largely based on […]
Volunteering within our community helps us lift everyone around us while making us feel good about our impact in the world. It’s something that is open to anyone, regardless of […]
Halloween is a time of year for candy, trick-or-treating, and of course, everyone’s favorite, dressing up as iconic Hollywood, video game, and pop culture characters. At first thought, donning a […]
Tips for Success in the Workplace with Duchenne.
Navigating this new 2023 school year is a challenge for anyone. But with a condition like Duchenne muscular dystrophy to contend with, it can become even more difficult. To find success while transitioning to a new school year with Duchenne, it’s important to communicate with teachers, administrators, and staff your needs.
The two-lane highway stretches to an infinite distance. It’s just you, the droning road noise and the horizon. It’s a time to think and ask yourself questions you never had […]
