Mama Bear

Mother of two boys with Duchenne shares how she’s successfully advocated for her children with a rare disease as a mama bear.

Back to School Resources for Duchenne in 2023

Navigating this new 2023 school year is a challenge for anyone. But with a condition like Duchenne muscular dystrophy to contend with, it can become even more difficult. To find success while transitioning to a new school year with Duchenne, it’s important to communicate with teachers, administrators, and staff your needs.

Road Tripping with a Wheelchair

The two-lane highway stretches to an infinite distance. It’s just you, the droning road noise and the horizon. It’s a time to think and ask yourself questions you never had […]