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Three Things You Missed From the AGAMREE (Vamorolone) Webinar
Agamree (vamorolone) was recently approved by the FDA, and Catalyst explains the new steroid and how to get it in this CureDuchenne Webinar.
5 Books About People with Disabilities That Will Change You
Books are a gateway for us to unlock our imaginations. To see ourselves in the characters that captivate our attention. To let our mind wander to places that wouldn’t have […]
Mama Bear
Mother of two boys with Duchenne shares how she’s successfully advocated for her children with a rare disease as a mama bear.
Great Gifts for Your Friend or Family Member with a Physical Disability
Shopping for someone with a physical disability can seem difficult as this holiday season rolls around. They may not have the same strength or dexterity as other kids and/or adults […]
FDA Approves AGAMREE® (vamorolone) Steroid for the Treatment of Duchenne Muscular Dystrophy
The U.S. FDA announced today its decision to approve AGAMREE (vamorolone), a new steroid for individuals with Duchenne muscular dystrophy 2 years or older. This approval comes largely based on […]
Volunteering is Possible, Even with a Physical Disability
Volunteering within our community helps us lift everyone around us while making us feel good about our impact in the world. It’s something that is open to anyone, regardless of […]
Adaptive Halloween Costumes for Duchenne Muscular Dystrophy
Halloween is a time of year for candy, trick-or-treating, and of course, everyone’s favorite, dressing up as iconic Hollywood, video game, and pop culture characters. At first thought, donning a […]
Tips for Success in the Workplace with Duchenne
Tips for Success in the Workplace with Duchenne.
Road Tripping with a Wheelchair
The two-lane highway stretches to an infinite distance. It’s just you, the droning road noise and the horizon. It’s a time to think and ask yourself questions you never had […]