Access to Exondys 51 in Texas

If you live in Texas, are amendable to exon skipping 51, and you are having difficulty accessing Exondys 51, you or your provider may file a complaint to  Exondys 51 is covered by STAR Kids, Texas’s Medicaid managed care program.


Type of information needed:

  1. Patient identification number
  2. Reference identification number
  3. Health plan
  4. Provider name and contact information
  5. Patient/Guardian contact information

Patients may also call the Ombudsman office at 1-866-566-8989 for additional assistance.

STAR Kids is Texas’s Medicaid managed care program that provides Medicaid benefits to children and adults with disabilities ages 20 years old and younger.  For more information please visit:

Providers and patients who have any issues or concerns are encouraged to testify and/or submit a written letter for public comment at the STAR Kids Advisory Council meeting.  The STAR Kids Advisory Council will meet on September 13, 2017 and December 6, 2017 at 9 am.

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