Action Alert: Contact Your Texas State Senator Today


Calling all Texans.  Take action today and let your voices be heard.  Call your Texas State Senator and ask them to support Medicaid funding for the treatment of Duchenne.


  • The Texas Legislative Budget Board (LBB) is made up of a panel of state legislators who must approve all new Medicaid expenditures above $500,000 (aggregate) in state funding.
  • This board must approve all new treatments and authorize funding before treatment will be reimbursed.
  • The Texas Senate Medicaid budget hearings are on January 30th-31st.
  • Because the Texas legislature only meets every 2 years it is important to have your voice heard now while they are still in session this year. So that would be a good time for families to reach out to the senators and tell their story

Call to Action:

  • Contact your state senators (Link to find their respective legislators
  • Tell your story about living with Duchenne
  • Ask them to support and authorize funding for the first approved treatment for Duchenne
  • Encourage other families to do the same



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