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Decoding Clinical Trials
Find a clinical trial that works for you! Clinicaltrials.gov, managed by the U.S. National Library of Medicine, includes 439,599 research studies in 50 states and 221 countries. Many of those […]
Stadium Accessibility
Attending a concert or sporting event is a fun activity for everyone. With proper planning and research, people with Duchenne can also participate and enjoy their favorite band or sports team with their friends.
The People Who Care About You
CureDuchenne is made up of people from all walks of life who share a common purpose — to find a cure for Duchenne and support all the families and patients […]
5 Tips for Staying Well During Cold and Flu Season
While COVID-19 is past its peak, the virus has not completely disappeared, and neither have the yearly cold and flu viruses. These viruses hit their peaks between December and February, […]
Meet the Team
Consistent and frequent physical therapy is one of the few currently available treatments that’s been proven to provide benefits at all ages with the potential to delay disease progression. However, traditional […]
CureDuchenne Holds First Duchenne Conference in Hungary to Educate and Connect
Community. Support. Knowledge. These are the things families and professionals worldwide seek – especially when faced with a rare disease like Duchenne. That’s why, in partnership with Duchenne Hungary, CureDuchenne […]
Adapt and Enjoy
Adaptive Sports for People with Duchenne The camaraderie developed among teammates in sports helps participants form strong bonds with other players. Even individual sports have adaptations that could prove to […]
Former Ducks Captain Continues to Fight Off the Ice to Find a Cure for Duchenne
An interview with the Millers and Ryan Getzlaf discussing the Getzlaf Golf Shootout that originally aired on NBC4
How to be a good friend to a Duchenne mom this Mother’s Day
Those gestures that you call “little things” are not little to us. The way you text or call just to check in makes me feel cared for. The cards you send when something heartbreaking has happened, makes me feel loved. The prayers you say for us when we aren’t even aware, the hugs, the long conversations we have – those are not little in my eyes. In fact, those are the very things that often keep me afloat somedays, and remind moms like me that we are not alone.