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Road Tripping with a Wheelchair
The two-lane highway stretches to an infinite distance. It’s just you, the droning road noise and the horizon. It’s a time to think and ask yourself questions you never had […]
Duchenne Muscular Dystrophy Moves Closer to Newborn Screening Recommendation
In a promising development, the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (ACHNDC) has advanced the nomination of Duchenne muscular dystrophy (DMD) for inclusion in the Recommended Uniform Screening Panel (RUSP), a list of disorders that are screened for at birth.
The Tools of The Trade in Accessible Gaming
Summer activities can often be focused on sports, waterparks, and physical activity, but that can leave out individuals with Duchenne and other physical disabilities. Accessible gaming can be another way […]
Breaking Barriers Through Accessible Video Games
Many people with Duchenne or physical disabilities play video games because it’s a way to stay competitive in a less physical environment and connect with friends who may live far […]
CureDuchenne visits Puerto Rico for latest Cares workshop
CureDuchenne Cares had its inaugural visit to San Juan, Puerto Rico, on June 10 for a workshop on current standards of care for Duchenne, research and clinical trials, family support, […]
CureDuchenne Link es ahora totalmente accesible para los hispanohablantes
Como parte de nuestra misión de avanzar en la investigación hacia tratamientos transformadores para todas las personas con Duchenne, CureDuchenne ha hecho que nuestro biobanco integrado de datos, CureDuchenne Link, […]
16 best accessories for power wheelchairs and scooters
Below, you’ll find some accessories that can make life using a wheelchair easier. It’s important to note, like people, all chairs are made differently. What might work for one wheelchair or person might not work for another. Be sure to measure your wheelchair dimensions and compare them with the specs of the product to ensure it will be a good fit before purchasing.
How to manage stress, anxiety, and depression
Paige Lembeck, PhD, a pediatric psychologist, spoke to the CureDuchenne community in a webinar about how they can best manage stress, anxiety, and depression for themselves and their children. Stress […]
CureDuchenne visits India and exchanges knowledge about Duchenne
Doug Levine, PT, a physical therapist instructor with CureDuchenne, and Kerry Johnson, senior director of community engagement, visited India in February to educate physical therapists, doctors, physical and occupational therapy […]