Newport Beach, Calif., September 5, 2013: Ryan Getzlaf, captain of the Anaheim Ducks, is hosting the third annual Getzlaf Golf Shootout on September 7 and 8 to benefit CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy. CureDuchenne is pleased to announce that Patriot Environmental Services, the premier provider of comprehensive environmental services in the southwestern United States, is the title sponsor of the Getzlaf Golf Shootout. Patriot is sponsoring the event in memory of Justin Paul Monastesse who lived with Duchenne for more than 25 years and passed on August 1, 2001.
The Getzlaf Golf Shootout charity golf event will be held at the Monarch Beach Golf Links on Sunday, September 8 in Dana Point. Each foursome will be teamed up with a professional hockey player as a fifth player. Confirmed current and former Anaheim Ducks players include:
Duchenne is a progressive muscle-wasting disease that impacts one in 3,500 boys. Boys are usually diagnosed at age 5, are in a wheelchair by 12 and most don’t live past their mid-20s. CureDuchenne supports the translation of research and development programs into the clinic to focus on developing potential therapies to transform the treatment of Duchenne. CureDuchenne has funded seven research projects that have gone into human clinical trials.
“We look forward to supporting CureDuchenne this weekend at the annual Getzlaf Golf Shootout,” said Getzlaf. “Duchenne is a devastating disease that impacts boys and robs them of the ability to walk, run and play sports. CureDuchenne continues to fund critical research to bring treatment to all boys with Duchenne.”
“Ryan and Paige Getzlaf are gracious and generous supporters of CureDuchenne,” said Debra Miller, founder of CureDuchenne. “We are in a race against time to help our son and other young men and boys who live with Duchenne. It is urgent to cure Duchene now to help this generation of those impacted with Duchenne.”
Sponsors include Patriot Environmental Services, The Sports Corporation, Bauer Hockey, The California Endowment, CNC Motors, The Hundred Acre Wine Group and Straub Distributing.
CureDuchenne is a national nonprofit organization located in Newport Beach, Calif., dedicated to finding a cure for Duchenne, the most common and most lethal form of muscular dystrophy. As the leading genetic killer of young boys, Duchenne affects more than 300,000 boys worldwide.
CureDuchenne has garnered international attention for its efforts to raise funds and awareness for Duchenne. With the help of CureDuchenne’s distinguished international panel of Scientific Advisors, funds raised by CureDuchenne support the most promising research aimed at treating and curing Duchenne. To date, seven CureDuchenne research projects have made their way into human clinical trials – a unique accomplishment as few health-related nonprofits have been successful in being a catalyst for human clinical trials.