NEWPORT BEACH, Calif., March 11, 2014 – CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, announced today that Chef Jamie Gwen will create a special menu for the annual Champions to CureDuchenne Newport Beach Gala on Saturday, March 29 at the Balboa Bay Club & Resort. Proceeds of this event will fund promising research to find a cure for Duchenne, a progressive muscle-wasting disease that impacts 1 in 3,500 boys.
Gwen is a celebrity chef, certified sommelier, lifestyle expert and four-time cookbook author who has been featured on television, on the radio and in print from coast-to-coast for more than a decade. She hosts a weekly Syndicated Radio Show that can be heard every Sunday on 70 radio stations across the country and in Southern California on KFWB News Talk 980. Gwen recently won the Food Network’s new show “Cutthroat Kitchen.”
“I am delighted to be designing the menu for the Champions to CureDuchenne Newport Beach Gala,” said Gwen. “Giving back to my community through philanthropy and delighting palates both fill my heart with joy, so it is a true honor to be included in this year’s festivities.”
“We are thrilled to have Chef Jaime Gwen create a delicious dinner for our Champions to CureDuchenne Gala to help make this a memorable event for our guests,” said Debra Miller, founder and CEO of CureDuchenne. “This event highlights both the urgency and hope of finding a cure for Duchenne. We believe in order to find the cure we need to fund the cure. CureDuchenne will continue to fund research to help this generation of boys living with Duchenne.”
Champions to CureDuchenne will celebrate CureDuchenne’s 10 years of successfully advancing Duchenne research. CureDuchenne will honor Doug Freeman, a nationally recognized former tax attorney and business executive, who played an integral role in establishing CureDuchenne’s successful philanthropy model.
Boys with Duchenne are usually diagnosed by 5, in a wheelchair by 12 and most don’t survive their mid-20s. Currently, there is no approved treatment for Duchenne. All proceeds of the Champions to CureDuchenne Gala will support the most promising research projects aimed at treating and curing Duchenne.
Go to www.CureDuchenne.org/NewportBeachGala to purchase tables and tickets. Or call at 949-872-2552.
CureDuchenne is a national nonprofit organization located in Newport Beach, Calif., dedicated to finding a cure for Duchenne, the most common and most lethal form of muscular dystrophy. As the leading genetic killer of young boys, Duchenne affects more than 300,000 boys worldwide. CureDuchenne has garnered international attention for its efforts to raise funds and awareness for Duchenne through venture philanthropy. With the help of CureDuchenne’s distinguished international panel of Scientific Advisors, funds raised by CureDuchenne support the most promising research aimed at treating and curing Duchenne. To date, seven CureDuchenne research projects have made their way into human clinical trials – a unique accomplishment as few health-related nonprofits have been as successful in being a catalyst for human clinical trials.