Newport Beach, Calif., July 23, 2013 – CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, is proud to be an official charity of the Tinker Bell Half Marathon. The Tinker Bell Half Marathon weekend is January 17-19, 2014. Runners are encouraged to join the CureDuchenne team and help raise funds to find a cure for Duchenne, a progressive muscle-wasting disease. Spots for the Tinker Bell Half Marathon are still available through CureDuchenne.
Disneyland® Resort becomes Never Land for a magical weekend. The events include the Never Land Family Fun 5K (January 17), Tinker Bell 10 K (January 18) and the Tinker Bell Half Marathon (January 19) which is 13.1 mile run that weaves through Disneyland® Resort. Click here, to register and run with the CureDuchenne Crusaders team. Runner packages include a one-day/one-park ticket to Disneyland.
“CureDuchenne is excited to participate in the Tinker Bell Half Marathon again this year,” said Debra Miller, founder and CEO of CureDuchenne. “We are on the run of our life to find a cure for the 300,000 boys worldwide with Duchenne. Real progress toward a cure is being made but we urgently need your support. Join the CureDuchenne Crusaders team and play a part in helping us raise awareness and fund promising research so we can cure Duchenne now.”
Duchenne is a devastating muscle disease that impacts 1 in 3,500 boys. Boys are usually diagnosed by the age of 5, in a wheelchair by 12 and most don’t survive their mid-20s.
For more information, go to www.cureduchenne.org or call 949-872-2552.
CureDuchenne is a national nonprofit organization located in Newport Beach, Calif., dedicated to finding a cure for Duchenne, the most common and most lethal form of muscular dystrophy. As the leading genetic killer of young boys, Duchenne affects more than 300,000 boys worldwide. CureDuchenne has garnered international attention for its efforts to raise funds and awareness for Duchenne through venture philanthropy. With the help of CureDuchenne’s distinguished international panel of Scientific Advisors, funds raised by CureDuchenne support the most promising research aimed at treating and curing Duchenne. To date, seven CureDuchenne research projects have made their way into human clinical trials – a unique accomplishment as few health-related nonprofits have been successful in being a catalyst for human clinical trials.