Newport Beach, Calif., DECEMBER 2, 2014 – CureDuchenne has joined #GivingTuesday, a first of its kind effort that will harness the collective power of a unique blend of partners to transform how people participate in the giving season. Following the Thanksgiving holiday and the kickoff of the holiday shopping season, #GivingTuesday inspires people to give back to charities like CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy.
CureDuchenne’s #GivingTuesday initiative highlights several boys who live with Duchenne, a progressive muscle-wasting disease that impacts one in every 3,500 boys. It tells their story and highlights the urgency of finding a cure for Duchenne. Learn more at Meet Gavin, Meet Yuva and Meet Jack. Boys are usually diagnosed at age 5, are in a wheelchair by 12 and most don’t survive their mid-20s. Currently there is no cure for Duchenne.
CureDuchenne is raising money to fund a $7 million exon skipping research project to help accelerate clinical trials and access to potential life-saving drugs that could help boys who live with Duchenne.
“GivingTuesday is an opportunity to capture the generosity of donors during the holiday season,” said Debra Miller, founder and CEO of CureDuchenne. “The most meaningful gift we can give is to help save boys lives. This is a rare opportunity to help fund a research project that can dramatically impact a child’s life in such a short time. Help us give this generation of boys with Duchenne a chance of a lifetime.”
CureDuchenne is a national nonprofit organization located in Newport Beach, Calif., dedicated to finding a cure for Duchenne, the most common and most lethal form of muscular dystrophy. As the leading genetic killer of young boys, Duchenne affects more than 300,000 boys worldwide. CureDuchenne has garnered international attention for its efforts to raise funds and awareness for Duchenne. With the help of CureDuchenne’s distinguished international panel of Scientific Advisors, funds raised by CureDuchenne support the most promising research aimed at treating and curing Duchenne. To date, seven CureDuchenne research projects have made their way into human clinical trials – a unique accomplishment as few health-related nonprofits have been successful in being a catalyst for human clinical trials.