(Austin, Texas) March 21, 2017 – Some champions are made on a field and some become champions by giving from the heart. On April 8, hundreds of champions committed to finding a cure for Duchenne muscular dystrophy will gather at The University of Texas Golf Club for the eighth annual Champions to CureDuchenne gala to raise awareness and help CureDuchenne find a cure for this fatal genetic disease. Champions for CureDuchenne is hosted by Quan Cosby, former wide receiver from UT, and presented by the Fired Up Charity Foundation. Tickets for this Texas-sized unforgettable evening are $150 and the event will be emceed by Jim Spencer, chief meteorologist at KXAN-TV.
Found mostly in boys, Duchenne muscular dystrophy causes muscle degeneration, growing worse as patients get older. Those with Duchenne often lose their ability to walk by their mid-teens and the disease claims their lives by their mid-20s. Duchenne affects one in 3,500 boys in the U.S. There are limited treatment options, and there is no cure for Duchenne muscular dystrophy.
Eight years ago, former University of Texas coach Mack Brown and his wife Sally teamed up with Tim and Laura Revell, parents of two boys with Duchenne muscular dystrophy, and created Champions to CureDuchenne, the Longhorn-style party held annually at the University of Texas Golf Club. Through the ongoing commitment of many throughout the community, Champions to CureDuchenne has raised more than a million dollars towards finding a cure for this devastating disease.
“When our sons were first diagnosed, there was little hope for children with Duchenne muscular dystrophy,” said Tim Revell, parent of two boys with Duchenne. “In the last year, we’ve seen two treatments approved, but this is not a cure. Boys with Duchenne continue to have their lives cut short way too soon, and by coming together as a community, we can change that. CureDuchenne needs your support to further invest in the thousands of boys whose lives are affected by Duchene. We need more champions to help us find a cure.”
The Champions to CureDuchenne Austin Gala is presented by Fired Up Charity Foundation. Event sponsors include Designer Floors of Texas, Fitzpatrick Insurance Solutions, H-E-B Tournament of Champions, NFL Alumni Austin, Reese Family Foundation, Russell Korman, Sarepta Therapeutics, Small Luxury Hotels of the World, Summit Stoneworks, and Waypoint Lighting. The event will feature cocktails, dinner, casino, silent and live auction. To purchase tickets and for more information, please go to www.ChampionsforaCure.org.
CureDuchenne is the leading nonprofit focused on funding research to find a cure for Duchenne muscular dystrophy, a disease that affects more than 300,000 boys worldwide. CureDuchenne’s mission is to extend and improve the lives of those affected by Duchenne. With support from CureDuchenne, nine research projects have advanced to human clinical trials. CureDuchenne provides the Duchenne community with resources on the best standard of care through its CureDuchenne Cares program. For more information, please visit CureDuchenne.org and follow us on Facebook, Twitter, Instagram and YouTube.