Press Releases

Global Nonprofit CureDuchenne to Host FUTURES National Conference for the Duchenne and Becker Muscular Dystrophy Community  on May 23-26 in Orlando, FL

Newport Beach, Calif. (May 7, 2024) – CureDuchenne, a global nonprofit committed to finding and funding a cure for Duchenne muscular dystrophy, announced its FUTURES National Conference will be held from May 23-26 in Orlando, Florida. FUTURES is a four-day event focused on bringing education, connection and hope to the Duchenne and Becker community. The annual event will take place as a hybrid event, offering attendees a chance to participate both online and in-person, at the JW Marriott Orlando, Grande Lakes.  

15th Annual Champions to CureDuchenne Raises over $385,000 to Fund Duchenne Muscular Dystrophy Research

AUSTIN, Texas., April 16, 2024 – CureDuchenne, a leading global nonprofit focused on finding and funding a cure for Duchenne muscular dystrophy, and the Revell family of Austin hosted the 15th annual fundraiser gala, Champions to CureDuchenne: Disco for Duchenne, on April 6, 2024. The event raised $385,000 to benefit CureDuchenne as it accelerates scientific research and pioneers educational programs to care for families affected by Duchenne, a progressive, fatal disease affecting 300,000 worldwide.

A Decade of Distinction: Napa in Newport Celebrates 10 Years of Wine, Culinary Excellence, and Philanthropy

NEWPORT BEACH Calif., March 8, 2024 – Marking a significant milestone, Napa in Newport benefiting CureDuchenne will commemorate its 10th anniversary on April 20, 2024, at the luxurious Pendry Newport Beach. Esteemed for its unparalleled selection of Napa Valley’s finest wines, this year’s gala is a celebration of a decade-long journey of philanthropy, community, and exquisite wine. The gala showcases a Grand Tasting, dining tables hosted by vintners, a handcrafted dinner with carefully selected wine pairings, and extraordinary auction items including rare wines, luxurious vacations, and one-of-a-kind experiences. The evening is set to be more intimate than ever before, with limited attendance and new, luxurious weekend ticket packages that include hotel accommodations and amenities. 

Miami Community Comes Together for CureDuchenne, Raising Nearly $2.5M Since 2021 

Miami, FL, March 25, 2024 – CureDuchenne and the Finazzo family of Miami hosted “Champions in Miami” on Saturday, March 9, 2024 at the Kimpton Surfcomber in Miami Beach, bringing together Miami’s top business leaders, entrepreneurs, influencers, and philanthropists for a night of delicious flavors, cocktails, cigars, and live entertainment. All event proceeds benefit CureDuchenne, a global leader in research, patient care, and innovation for improving and extending the lives of those living with Duchenne muscular dystrophy.  

15th Annual Champions to CureDuchenne Returns to The University of Texas Golf Club on April 6 to Find a Cure for  Duchenne Muscular Dystrophy

AUSTIN, Texas., February 28, 2024 – CureDuchenne, a leading global nonprofit focused on finding and funding a cure for Duchenne muscular dystrophy, and the Revell family of Austin will host the 15th annual fundraiser gala, Champions to CureDuchenne: Disco for Duchenne, on April 6, 2024. Austin’s own “Saturday Night Fever” will be filled with glittering lights and pulsating beats, bringing hundreds of philanthropists, businesspeople, and local community members together under one roof at the University of Texas Golf Club to disco for a purpose. Emmy Award-winning weathercaster Jim Spencer will emcee the event, featuring a vibrant disco dance party, extraordinary auctions, delightful drinks, and a tantalizing culinary experience. All proceeds from the event benefit CureDuchenne as it accelerates scientific research and pioneers educational programs to care for families affected by Duchenne — a progressive, fatal disease affecting 300,000 worldwide.