San Antonio, Texas, September 27, 2016 – CureDuchenne, a national non-profit, and local families have joined to raise funds for research and new treatments for children afflicted with Duchenne muscular dystrophy, the most devastating and fatal muscular disease in children.
Help give these children a fighting chance by taking part in Dealing for Duchenne, a charity event to raise awareness and money to ensure the necessary research continues. The event is happening on Saturday, October 15, 2016 at Pedrotti’s North Wind Ranch in Helotes starting at 6 p.m. Enjoy casino games, food, drinks and an auction. Bill Taylor, chief meteorologist, KENS5 will emcee Dealing for Duchenne. Individual tickets are $100 and include dinner and drinks. A table for eight is $1,000 and includes name recognition along with dinner and drinks.
Duchenne muscular dystrophy is a fatal genetic muscle disease that impacts 300,000 patients worldwide, most of them boys and young men. Duchenne patients are usually diagnosed at age 5, lose their ability to walk by 12 and most don’t survive their mid-20s. Currently there is no cure for Duchenne, but treatment could improve their quality of life.
“We personally have been dealing with Duchenne since our son Joshua was diagnosed,” said Maribel Munoz, a resident of San Antonio. “Joshua and all boys with Duchenne are in a race against time. Please join us for a night of hope to help save the lives of all those with Duchenne.”
Proceeds of the event will benefit CureDuchenne, a national organization that is leading the effort to accelerate the drug approval process on therapies such as Exondys 51(eteplirsen), the very first drug to be approved by the FDA to treat Duchenne. Approved just last week, the drug is expected to make the disease more manageable. This is just the beginning and you can help ensure the fight continues by participating in Dealing for Duchenne.
Dealing for Duchenne – San Antonio sponsors include: Target, Langley & Banack and Dixondale Farms. For more information, visit www.DealingForDuchenne.
CureDuchenne is a national nonprofit organization dedicated to finding a cure for Duchenne muscular dystrophy, the most common and lethal form of muscular dystrophy. Duchenne affects more than 300,000 people worldwide, most of them boys and young men. With the help of CureDuchenne’s distinguished international panel of Scientific Advisors, funds raised by CureDuchenne support the most promising research aimed at treating and curing Duchenne. To date, nine CureDuchenne funded research projects have advanced into human clinical trials. CureDuchenne also brings physical therapy and standard of care to local communities around the country through its CureDuchenne Cares Program. For more information, please visit CureDuchenne.org and follow us on Facebook, Twitter, Instagram and YouTube.