2021 FUTURES Quality of Life Panel: Making Decisions
Focused on empowering families to make informed decisions about their child’s care / personal care across all junctures of the Duchenne journey.

John Brandsema, MD
Child Neurologist and Neuromuscular Section Head
Children’s Hospital of Philadelphia



Sheryl Marrazzo
Duchenne Mother, Grandmother and Advocate
4 Jake's Sake | CureDuchenne

Christina Trout, RN, MSN
Advanced Practice Nurse, Neuromuscular Program
Department of Pediatrics, University of Iowa Stead Family Children’s Hospital

Jennifer Wallace Valdes, PT
CureDuchenne Certified Physical Therapist
CureDuchenne Physical Therapy Program
Video
