Hogan Family

Raising Awareness and Funding Duchenne Research: Christian Hogan and his 22-year-old son Micah, who has Duchenne, envisioned this event after attending a reggae show in Long Beach several years ago.

Family Story Ormiston

Ormiston Family

Where to start? Darren is adopted. He came to us at 2 months old. I immediately requested any and all evaluations available because mom had been using meth while pregnant […]

Family Story Nilson

Nilson Family

Our youngest son, Henry, was diagnosed with Duchenne in August 2011 – shortly before his 3rd birthday. It was a fluke test that shocked even the doctors as it was […]

Family Story Aluffi

Aluffi Family

Joaquin was diagnosed with Duchenne Muscular Dystrophy in early 2019. While this diagnosis was completely devastating it also answered so many questions that we had been struggling with for years. […]