alejandro.sanabria@americaneagle.com, Author at CureDuchenne

Monday Family

May 9, 2024

We are blessed that our son Momo joined our family through adoption. It was a long road to bring him home that led us to understand that God’s plans are […]

Miner Moebel Family

May 1, 2024

My grandson Shepherd has been living with his Duchenne diagnosis for 5 years. Since that day in 2019, our family has turned into crusaders for the Cause.  It has been […]

New Developments in Mobile Arm Supports for Upper Extremity Weakness

December 3, 2021

Our presenters take us through the ins and out of mobile arm supports that are currently available, how they work, who they work for and other details. Many individuals living […]

Reimagining Quality of Life in Duchenne

September 14, 2021

This webinar, in partnership with the University of Kansas Medical Center, explores topics like achieving milestones, quality of life, and setting goals in families navigating Duchenne muscular dystrophy. The panelists […]

Cutting Edge Assistive Technology to Enhance Independence

September 10, 2021

Children and adults with complex neuromuscular disorders such as Duchenne muscular dystrophy depend on others for controlling their environment, their mobility and most daily living activities. There are new technologies […]

CureDuchenne Launches Supplemental Newborn Screening for Early Diagnosis

July 22, 2021

Brigham and Women’s Hospital Becomes Only US Birth Hospital with a Program Offering Parents a Choice to Have Supplemental Newborn Screening for Duchenne Muscular Dystrophy **UPDATE** In part as a […]

Exercise and Duchenne Muscular Dystrophy: Part 2

June 7, 2021

Currently, there is a clear paucity of information to guide exercise prescription for patients with DMD. While clinical concerns based on the notion that excessive exercise may exacerbate the disease […]

Winslow Family

June 1, 2021

I left the Doctor’s room with a packet of flu meds for Jason and an unexpected post it sticker handed to me by the GP that read Duchenne Muscular Dystrophy. […]

Revell Family

June 1, 2021

My wife Laura, found CureDuchenne by doing a google search around Duchenne organizations that aligned with our Christian Faith. The search results led us to the Miller family who turned […]